Universität zu Köln

Ernst, Gundula, Klein, Luisa, Kowalewski, Kerstin and Szczepanski, Ruediger (2020). I'm still here - Training for the Siblings of Chronically Ill or Handicapped Children. Klinische Padiatr., 232 (6). S. 300 - 307. STUTTGART: GEORG THIEME VERLAG KG. ISSN 1439-3824

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Abstract

Background Siblings of chronically ill or handicapped children are exposed to increased stress as a result of their special life situation. This can lead to psychological abnormalities. International studies show that programs for siblings can reduce this risk. In Germany, there is a lack of compact educational programs for siblings. Such an offer was tested with this workshop. In the one-day group training, coping strategies were developed and disease knowledge conveyed in order to reduce fears. The parents receive parallel training. Methods Altogether 19 sibling workshops were held. Before and six weeks after the training, standardized questionnaires were used to record sibling distress, mental health problems, and their health-related quality of life as well as family burden. T-tests for dependent samples were used to check the changes before and after training. Results Ninety-two children (average age 9.6 years; 54% female) and their parents took part in the training. From the parents' point of view, 32.5% of the children initially had an increased risk of psychological distress because of the family situation. After the training, this was reduced to 25.3%. The mental health problems were significantly reduced, as was the overall family burden. According to the self-assessment, the quality of life of the children improved. Discussion The families seem to benefit from the compact training. The workshop was applicable for families of children with different diseases and in different settings.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Ernst, Gundula UNSPECIFIED UNSPECIFIED UNSPECIFIED Klein, Luisa UNSPECIFIED UNSPECIFIED UNSPECIFIED Kowalewski, Kerstin UNSPECIFIED UNSPECIFIED UNSPECIFIED Szczepanski, Ruediger UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-313702
DOI:	10.1055/a-1214-6624
Journal or Publication Title:	Klinische Padiatr.
Volume:	232
Number:	6
Page Range:	S. 300 - 307
Date:	2020
Publisher:	GEORG THIEME VERLAG KG
Place of Publication:	STUTTGART
ISSN:	1439-3824
Language:	German
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language CHRONIC HEALTH CONDITIONS; QUALITY-OF-LIFE; GERMAN HEALTH; ADOLESCENTS; QUESTIONNAIRE; INTERVIEW; PROGRAM; KIGGS Multiple languages Pediatrics Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/31370