Universität zu Köln

Janssen, Inger Miriam, Gerhardus, Ansgar ORCID: 0000-0003-3637-7419, von Gersdorff, Gero D., Baldamus, Conrad August, Schaller, Mathias, Barth, Claudia and Scheibler, Fueloep (2015). Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients. Patient Prefer. Adherence, 9. ALBANY: DOVE MEDICAL PRESS LTD. ISSN 1177-889X

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Abstract

Background: Chronic kidney disease is an increasing health problem worldwide and in its final stage (stage V) can only be treated by renal replacement therapy, mostly hemodialysis. Hemodialysis has a major influence on the everyday life of patients and many patients report dissatisfaction with treatment. Little is known about which aspects of treatment are considered important by hemodialysis patients. The objective of this study was to rate the relative importance of different outcomes for hemodialysis patients and to analyze whether the relative importance differed among subgroups of patients. Patients and methods: Within the framework of a yearly questionnaire which is distributed among patients receiving hemodialysis by the largest hemodialysis provider in Germany, we assessed the relative importance of 23 outcomes as rated on a discrete visual analog scale. Descriptive statistics were used to rank the outcomes. Subgroup analyses were performed using Mann-Whitney U or Kruskal-Wallis tests. Results: Questionnaires of 4,518 hemodialysis patients were included in the analysis. The three most important outcomes were safety of treatment, health-related quality of life, and satisfaction with care. Further important outcomes were hospital stays, accompanying symptoms, hemodialysis duration, and the improvement or preservation of a good emotional state. Age, profession, and education had the strongest influence on relevant differences of preferences for outcomes; no relevant influence of sex or comorbidity was observed. Conclusion: Outcomes concerning the delivery or provision of care and aspects influencing quality of life are rated by patients to be at least as important as clinical outcomes. Many of the outcomes judged to be important by the patients are not regularly considered in research, evaluation studies, or quality programs.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Janssen, Inger Miriam UNSPECIFIED UNSPECIFIED UNSPECIFIED Gerhardus, Ansgar UNSPECIFIED orcid.org/0000-0003-3637-7419 UNSPECIFIED von Gersdorff, Gero D. UNSPECIFIED UNSPECIFIED UNSPECIFIED Baldamus, Conrad August UNSPECIFIED UNSPECIFIED UNSPECIFIED Schaller, Mathias UNSPECIFIED UNSPECIFIED UNSPECIFIED Barth, Claudia UNSPECIFIED UNSPECIFIED UNSPECIFIED Scheibler, Fueloep UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-416389
DOI:	10.2147/PPA.S79559
Journal or Publication Title:	Patient Prefer. Adherence
Volume:	9
Date:	2015
Publisher:	DOVE MEDICAL PRESS LTD
Place of Publication:	ALBANY
ISSN:	1177-889X
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language CHRONIC KIDNEY-DISEASE; FAMILY CAREGIVERS; REPORTED OUTCOMES; DIALYSIS; HEALTH; SATISFACTION; CARE; INTERVENTION; FOUNDATION; MANAGEMENT Multiple languages Medicine, General & Internal Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/41638