Universität zu Köln

Stephan, Astrid, Marques, Maria J. ORCID: 0000-0001-9214-4180, Bieber, Anja, Machado, Ana S., Balsinha, Conceicao, Handels, Ron, Makai, Peter, Goncalves-Pereira, Manuel and Dichter, Martin N. (2021). Self- and proxy-rating of the ICECAP-O for people with dementia: A cross-sectional linguistic validation study in Germany and Portugal. Z. Evidenz Fortbild. Qual. Gesundheitswesen, 162. S. 24 - 32. MUNICH: ELSEVIER GMBH. ISSN 2212-0289

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Abstract

Background: The capability concept became a recognized approach to the measurement of quality of life. The ICECAP-O for older people aims to measure capabilities and has recently been used in people with dementia (self-rating) and informal carers (substituted judgement). However, linguistic validation studies have so far been lacking. Methods: A cross-sectional cognitive interview study with 15 people with dementia (PwD) and 23 informal carers (ICs) was conducted in Germany and Portugal. Respondents were asked to reveal their understanding of the ICECAP-O and the capability approach as well as the response process. A summarising content analysis was performed. Results: Despite the small sample, our linguistic validation of the German and Portuguese translations detected considerable difficulties or deviations in item comprehension when compared with the intended meaning. In some cases, the item interpretations did not reflect the entire scope of the associated capability dimension, though they were basically correct. Moreover, participants were not able to differentiate some items appropriately from one another, and some misinterpretations occurred. ICs relied mainly on observable behaviour, emotions, or verbal expressions of the PwD. Therefore, ICs found items that ask about the achievement of individual expectations or thoughts about the future difficult to assess. Only very few PwD clearly indicated that they understood the capability approach. ICs in Germany had more difficulties in understanding the capability concept than in ICs Portugal. Discussion: This linguistic validation study in Germany and Portugal indicates a need for some rephrasing and refinements of the ICECAP-O translated items in both countries to fully encompass some dimensions and avoid misinterpretations. Further studies with larger samples are necessary. Based on our findings, the current German version for ICs' substituted judgement cannot be recommended for this kind of respondents without further advancements.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Stephan, Astrid UNSPECIFIED UNSPECIFIED UNSPECIFIED Marques, Maria J. UNSPECIFIED orcid.org/0000-0001-9214-4180 UNSPECIFIED Bieber, Anja UNSPECIFIED UNSPECIFIED UNSPECIFIED Machado, Ana S. UNSPECIFIED UNSPECIFIED UNSPECIFIED Balsinha, Conceicao UNSPECIFIED UNSPECIFIED UNSPECIFIED Handels, Ron UNSPECIFIED UNSPECIFIED UNSPECIFIED Makai, Peter UNSPECIFIED UNSPECIFIED UNSPECIFIED Goncalves-Pereira, Manuel UNSPECIFIED UNSPECIFIED UNSPECIFIED Dichter, Martin N. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-596667
DOI:	10.1016/j.zefq.2021.02.008
Journal or Publication Title:	Z. Evidenz Fortbild. Qual. Gesundheitswesen
Volume:	162
Page Range:	S. 24 - 32
Date:	2021
Publisher:	ELSEVIER GMBH
Place of Publication:	MUNICH
ISSN:	2212-0289
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language LIFE; CARE Multiple languages Health Policy & Services Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/59666