Fisse, Anna Lena, Motte, Jeremias ORCID: 0000-0002-6624-8565, Grueter, Thomas, Kohle, Felix ORCID: 0000-0002-4429-0367, Kronlage, Cornelius, Stahl, Jan-Hendrik, Winter, Natalie, Seeliger, Tabea, Gingele, Stefan, Stascheit, Frauke, Hotter, Benjamin, Klehmet, Juliane, Kummer, Karsten, Enax-Krumova, Elena K., Sturm, Dietrich, Skripuletz, Thomas ORCID: 0000-0001-8550-335X, Schmidt, Jens, Yoon, Min-Suk, Pitarokoili, Kalliopi, Lehmann, Helmar C. and Grimm, Alexander . Public health situation of CIDP patients in nine German centers-neuritis network Germany. Nervenarzt. NEW YORK: SPRINGER. ISSN 1433-0407

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Abstract

Background Diagnosis and treatment of patients with immune-mediated neuropathies is challenging due to the heterogeneity of the diseases. Objectives To assess similarities and differences in the current care of patients with immune-mediated polyneuropathies in specialized centers in Germany within the German neuritis network Neuritis Netz. Material and methods We conducted a cross-sectional survey of nine neurological departments in Germany that specialize in the care of patients with immune-mediated neuropathies. We assessed the diagnosis, the approach to diagnostic work-up and follow-up, typical symptoms at manifestation and progression of the disease, and treatment data. Results This report includes data from 1529 patients per year treated for immune-mediated neuropathies, of whom 1320 suffered from chronic inflammatory demyelinating polyneuropathy (CIDP). Diagnostic work-up almost always included nerve conduction studies, electromyography, and lumbar puncture in accordance with current guidelines. The use of ultrasound, biopsy, and MRI varied. The most important clinical parameter for therapy monitoring in all centers was motor function in the clinical follow-up examinations. A wide range of different immunosuppressants was used for maintenance therapy in about 15% of patients. Conclusions These data provide important epidemiological insights into the care of patients with immune-mediated neuropathies in Germany. The further development of specific recommendations for treatment and follow-up examinations is necessary to ensure a uniform standard of patient care. This effort is greatly facilitated by a structured collaboration between expert centers such as Neuritis Netz.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Fisse, Anna LenaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Motte, JeremiasUNSPECIFIEDorcid.org/0000-0002-6624-8565UNSPECIFIED
Grueter, ThomasUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kohle, FelixUNSPECIFIEDorcid.org/0000-0002-4429-0367UNSPECIFIED
Kronlage, CorneliusUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Stahl, Jan-HendrikUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Winter, NatalieUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Seeliger, TabeaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gingele, StefanUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Stascheit, FraukeUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hotter, BenjaminUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Klehmet, JulianeUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kummer, KarstenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Enax-Krumova, Elena K.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Sturm, DietrichUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Skripuletz, ThomasUNSPECIFIEDorcid.org/0000-0001-8550-335XUNSPECIFIED
Schmidt, JensUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Yoon, Min-SukUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pitarokoili, KalliopiUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Lehmann, Helmar C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Grimm, AlexanderUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-691229
DOI: 10.1007/s00115-022-01377-0
Journal or Publication Title: Nervenarzt
Publisher: SPRINGER
Place of Publication: NEW YORK
ISSN: 1433-0407
Language: German
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
DEMYELINATING POLYRADICULONEUROPATHY REPORT; NERVE SOCIETY GUIDELINE; DIAGNOSISMultiple languages
Clinical Neurology; PsychiatryMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/69122

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