Bausewein, C., Hodiamont, F., Berges, N., Ullrich, A., Gerlach, C., Oechsle, K., Pauli, B., Weber, J., Stiel, S., Schneider, N., Krumm, N., Rolke, R., Gebel, C., Jansky, M., Nauck, F., Wedding, U., van Oorschot, B., Roch, C., Werner, L., Fischer, M., Schallenburger, M., Reuters, M. C., Schwartz, J., Neukirchen, M., Guelay, A., Maus, K., Jaspers, B., Radbruch, L., Heckel, M., Klinger, I., Ostgathe, C., Kriesen, U., Junghanss, C., Lehmann, E., Gesell, D., Gauder, S., Boehlke, C., Becker, G., Pralong, A., Strupp, J., Leisse, C., Schloesser, K., Voltz, R., Jung, N. and Simon, S. T. (2022). National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany-study protocol of a mixed-methods project. BMC Palliat. Care, 21 (1). LONDON: BMC. ISSN 1472-684X

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Abstract

Background In the SARS-CoV-2 pandemic, general and specialist Palliative Care (PC) plays an essential role in health care, contributing to symptom control, psycho-social support, and providing support in complex decision making. Numbers of COVID-19 related deaths have recently increased demanding more palliative care input. Also, the pandemic impacts on palliative care for non-COVID-19 patients. Strategies on the care for seriously ill and dying people in pandemic times are lacking. Therefore, the program 'Palliative care in Pandemics' (PallPan) aims to develop and consent a national pandemic plan for the care of seriously ill and dying adults and their informal carers in pandemics including (a) guidance for generalist and specialist palliative care of patients with and without SARS-CoV-2 infections on the micro, meso and macro level, (b) collection and development of information material for an online platform, and (c) identification of variables and research questions on palliative care in pandemics for the national pandemic cohort network (NAPKON). Methods Mixed-methods project including ten work packages conducting (online) surveys and qualitative interviews to explore and describe i) experiences and burden of patients (with/without SARS-CoV-2 infection) and their relatives, ii) experiences, challenges and potential solutions of health care professionals, stakeholders and decision makers during the SARS-CoV-2 pandemic. The work package results inform the development of a consensus-based guidance. In addition, best practice examples and relevant literature will be collected and variables for data collection identified. Discussion For a future pandemic preparedness national and international recommendations and concepts for the care of severely ill and dying people are necessary considering both generalist and specialist palliative care in the home care and inpatient setting.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Bausewein, C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hodiamont, F.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Berges, N.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ullrich, A.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gerlach, C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Oechsle, K.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pauli, B.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Weber, J.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Stiel, S.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schneider, N.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Krumm, N.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Rolke, R.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gebel, C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Jansky, M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Nauck, F.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wedding, U.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
van Oorschot, B.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Roch, C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Werner, L.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Fischer, M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schallenburger, M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Reuters, M. C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schwartz, J.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Neukirchen, M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Guelay, A.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Maus, K.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Jaspers, B.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Radbruch, L.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Heckel, M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Klinger, I.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ostgathe, C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kriesen, U.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Junghanss, C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Lehmann, E.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gesell, D.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gauder, S.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Boehlke, C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Becker, G.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pralong, A.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Strupp, J.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Leisse, C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schloesser, K.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Voltz, R.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Jung, N.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Simon, S. T.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-694253
DOI: 10.1186/s12904-021-00898-w
Journal or Publication Title: BMC Palliat. Care
Volume: 21
Number: 1
Date: 2022
Publisher: BMC
Place of Publication: LONDON
ISSN: 1472-684X
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
NEGATIVE AFFECT; COVID-19; VALIDATIONMultiple languages
Health Care Sciences & Services; Health Policy & ServicesMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/69425

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