Bredart, Anne, Anota, Amelie, Dick, Julia, Cano, Alejandra, De Pauw, Antoine, Kop, Jean-Luc, Aaronson, Neil K., Bleiker, Eveline M., Brunet, Joan ORCID: 0000-0003-1945-3512, Devilee, Peter, Stoppa-Lyonnet, Dominique, Schmutzler, Rita and Dolbeault, Sylvie (2020). The Psychosocial Aspects in Hereditary Cancer questionnaire in women attending breast cancer genetic clinics: Psychometric validation across French-, German- and Spanish-language versions. Eur. J. Cancer Care, 29 (1). HOBOKEN: WILEY. ISSN 1365-2354

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Abstract

Background We performed a comprehensive assessment of the psychometrics of the Psychosocial Aspects in Hereditary Cancer (PAHC) questionnaire in French, German and Spanish. Methods Women consecutively approached in Cancer Genetic Clinics completed the PAHC, distress and satisfaction questionnaires at pre-testing (T1) and after test result disclosure (T2). In addition to standard psychometric attributes, we assessed the PAHC ability to respond to change (i.e. improvement or deterioration from T1 to T2) in perceived difficulties and computed minimal important differences (MID) in PAHC scores as compared with self-reported needs for additional counselling. Results Of 738 eligible counselees, 214 (90%) in France (Paris), 301 (92%) in Germany (Cologne) and 133 (77%) in Spain (Barcelona) completed the PAHC. A six-factor revised PAHC model yielded acceptable CFA goodness-of-fit indexes and good all scales internal consistencies. PAHC scales demonstrated expected conceptual differences with distress and satisfaction with counselling. Different levels of psychosocial difficulties were evidenced between counselees' subgroups and over time (p-values < .05). MID estimates ranged from 8 to 15 for improvement and 9 to 21 for deterioration. Conclusion The PAHC French, German and Spanish versions are reliable and valid for evaluating the psychosocial difficulties of women at high BC risk attending genetic clinics.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Bredart, AnneUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Anota, AmelieUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Dick, JuliaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Cano, AlejandraUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
De Pauw, AntoineUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kop, Jean-LucUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Aaronson, Neil K.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bleiker, Eveline M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Brunet, JoanUNSPECIFIEDorcid.org/0000-0003-1945-3512UNSPECIFIED
Devilee, PeterUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Stoppa-Lyonnet, DominiqueUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schmutzler, RitaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Dolbeault, SylvieUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-133528
DOI: 10.1111/ecc.13173
Journal or Publication Title: Eur. J. Cancer Care
Volume: 29
Number: 1
Date: 2020
Publisher: WILEY
Place of Publication: HOBOKEN
ISSN: 1365-2354
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
OVARIAN-CANCER; NEEDS; DISTRESS; IMPACT; SATISFACTION; ANXIETY; CAREMultiple languages
Oncology; Health Care Sciences & Services; Nursing; RehabilitationMultiple languages
Refereed: Yes
URI: http://kups.ub.uni-koeln.de/id/eprint/13352

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