March, Stefanie, Andrich, Silke, Drepper, Johannes, Horenkamp-Sonntag, Dirk, Icks, Andrea, Ihle, Peter, Kieschke, Joachim, Kollhorst, Bianca, Maier, Birga, Meyer, Ingo, Mueller, Gabriele, Ohlmeier, Christoph, Peschke, Dirk, Richter, Adrian, Rosenbusch, Marie-Luise, Scholten, Nadine, Schulz, Mandy, Stallmann, Christoph, Swart, Enno, Wobbe-Ribinski, Stefanie, Wolter, Antke, Zeidler, Jan and Hoffmann, Falk (2019). Good Practice Data Linkage. Gesundheitswesen, 81 (8-9). S. 636 - 651. STUTTGART: GEORG THIEME VERLAG KG. ISSN 1439-4421

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Abstract

Individual data linkage of different data sources for research purposes is being increasingly used in Germany in recent years. However, generally accepted methodological guidance is missing. The aim of this article is to define such methodological standards for research projects. Another aim is to provide readers with a checklist for critical appraisal of research proposals and articles. Since 2016, an expert panel of members of different German scientific societies have worked together and developed 7 guidelines with a total of 27 practical recommendations. These recommendations include (1) research aims, questions, data sources and resources, (2) infrastructure and data flow, (3) data privacy, (4) ethics, (5) key variables and type of linkage, (6) data validation/quality assurance and (7) long-term use for future research questions. The authors provide a rationale for each recommendation. Future revisions will include any new developments in science and data privacy.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
March, StefanieUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Andrich, SilkeUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Drepper, JohannesUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Horenkamp-Sonntag, DirkUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Icks, AndreaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ihle, PeterUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kieschke, JoachimUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kollhorst, BiancaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Maier, BirgaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Meyer, IngoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Mueller, GabrieleUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ohlmeier, ChristophUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Peschke, DirkUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Richter, AdrianUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Rosenbusch, Marie-LuiseUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Scholten, NadineUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schulz, MandyUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Stallmann, ChristophUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Swart, EnnoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wobbe-Ribinski, StefanieUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wolter, AntkeUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Zeidler, JanUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hoffmann, FalkUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-145422
DOI: 10.1055/a-0962-9933
Journal or Publication Title: Gesundheitswesen
Volume: 81
Number: 8-9
Page Range: S. 636 - 651
Date: 2019
Publisher: GEORG THIEME VERLAG KG
Place of Publication: STUTTGART
ISSN: 1439-4421
Language: German
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
DATA QUALITY ASSESSMENT; HEALTH-INSURANCE DATA; RECORD-LINKAGE; DATA PROTECTION; SECONDARY DATA; REGISTRY DATA; COHORT; GUIDELINESMultiple languages
Public, Environmental & Occupational HealthMultiple languages
Refereed: Yes
URI: http://kups.ub.uni-koeln.de/id/eprint/14542

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