Universität zu Köln

Mueller, Brigitte, Engelbert, Raoul, Baratta-Ziska, Frances, Bartels, Bart, Blanc, Nicole, Brizola, Evelise ORCID: 0000-0001-8067-5101, Fraschini, Paolo ORCID: 0000-0002-5912-6447, Hill, Claire, Marr, Caroline, Mills, Lisa, Montpetit, Kathleen, Pacey, Verity ORCID: 0000-0002-5577-2732, Molina, Miguel Rodriguez, Schuuring, Marleen, Verhille, Chantal, de Vries, Olga, Yeung, Eric Hiu Kwong and Semler, Oliver (2018). Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta. Orphanet J. Rare Dis., 13. LONDON: BMC. ISSN 1750-1172

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Abstract

On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0-18 years with osteogenesis imperfecta.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Mueller, Brigitte UNSPECIFIED UNSPECIFIED UNSPECIFIED Engelbert, Raoul UNSPECIFIED UNSPECIFIED UNSPECIFIED Baratta-Ziska, Frances UNSPECIFIED UNSPECIFIED UNSPECIFIED Bartels, Bart UNSPECIFIED UNSPECIFIED UNSPECIFIED Blanc, Nicole UNSPECIFIED UNSPECIFIED UNSPECIFIED Brizola, Evelise UNSPECIFIED orcid.org/0000-0001-8067-5101 UNSPECIFIED Fraschini, Paolo UNSPECIFIED orcid.org/0000-0002-5912-6447 UNSPECIFIED Hill, Claire UNSPECIFIED UNSPECIFIED UNSPECIFIED Marr, Caroline UNSPECIFIED UNSPECIFIED UNSPECIFIED Mills, Lisa UNSPECIFIED UNSPECIFIED UNSPECIFIED Montpetit, Kathleen UNSPECIFIED UNSPECIFIED UNSPECIFIED Pacey, Verity UNSPECIFIED orcid.org/0000-0002-5577-2732 UNSPECIFIED Molina, Miguel Rodriguez UNSPECIFIED UNSPECIFIED UNSPECIFIED Schuuring, Marleen UNSPECIFIED UNSPECIFIED UNSPECIFIED Verhille, Chantal UNSPECIFIED UNSPECIFIED UNSPECIFIED de Vries, Olga UNSPECIFIED UNSPECIFIED UNSPECIFIED Yeung, Eric Hiu Kwong UNSPECIFIED UNSPECIFIED UNSPECIFIED Semler, Oliver UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-173051
DOI:	10.1186/s13023-018-0905-4
Journal or Publication Title:	Orphanet J. Rare Dis.
Volume:	13
Date:	2018
Publisher:	BMC
Place of Publication:	LONDON
ISSN:	1750-1172
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language GENOTYPE-PHENOTYPE CORRELATIONS; FOLLOW-UP; PERCEIVED COMPETENCE; MUSCLE STRENGTH; CHILDHOOD; SCOLIOSIS; IMPAIRMENT; DISABILITY; BONE; SPONDYLODESIS Multiple languages Genetics & Heredity; Medicine, Research & Experimental Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/17305