Mueller, Brigitte, Engelbert, Raoul, Baratta-Ziska, Frances, Bartels, Bart, Blanc, Nicole, Brizola, Evelise ORCID: 0000-0001-8067-5101, Fraschini, Paolo ORCID: 0000-0002-5912-6447, Hill, Claire, Marr, Caroline, Mills, Lisa, Montpetit, Kathleen, Pacey, Verity ORCID: 0000-0002-5577-2732, Molina, Miguel Rodriguez, Schuuring, Marleen, Verhille, Chantal, de Vries, Olga, Yeung, Eric Hiu Kwong and Semler, Oliver (2018). Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta. Orphanet J. Rare Dis., 13. LONDON: BMC. ISSN 1750-1172

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Abstract

On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0-18 years with osteogenesis imperfecta.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Mueller, BrigitteUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Engelbert, RaoulUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Baratta-Ziska, FrancesUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bartels, BartUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Blanc, NicoleUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Brizola, EveliseUNSPECIFIEDorcid.org/0000-0001-8067-5101UNSPECIFIED
Fraschini, PaoloUNSPECIFIEDorcid.org/0000-0002-5912-6447UNSPECIFIED
Hill, ClaireUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Marr, CarolineUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Mills, LisaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Montpetit, KathleenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pacey, VerityUNSPECIFIEDorcid.org/0000-0002-5577-2732UNSPECIFIED
Molina, Miguel RodriguezUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schuuring, MarleenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Verhille, ChantalUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
de Vries, OlgaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Yeung, Eric Hiu KwongUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Semler, OliverUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-173051
DOI: 10.1186/s13023-018-0905-4
Journal or Publication Title: Orphanet J. Rare Dis.
Volume: 13
Date: 2018
Publisher: BMC
Place of Publication: LONDON
ISSN: 1750-1172
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
GENOTYPE-PHENOTYPE CORRELATIONS; FOLLOW-UP; PERCEIVED COMPETENCE; MUSCLE STRENGTH; CHILDHOOD; SCOLIOSIS; IMPAIRMENT; DISABILITY; BONE; SPONDYLODESISMultiple languages
Genetics & Heredity; Medicine, Research & ExperimentalMultiple languages
Refereed: Yes
URI: http://kups.ub.uni-koeln.de/id/eprint/17305

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