Universität zu Köln

Seidel, Danila ORCID: 0000-0003-4388-3117, Graeff, Luisa A. Duran, Vehreschild, Maria J. G. T., Wisplinghoff, Hilmar, Ziegler, Maren, Vehreschild, J. Janne, Liss, Blasius, Hamprecht, Axel ORCID: 0000-0003-1449-5780, Koehler, Philipp ORCID: 0000-0002-7386-7495, Racil, Zdenek, Klimko, Nikolay, Sheppard, Donald C., Herbrecht, Raoul ORCID: 0000-0002-9381-4876, Chowdhary, Anuradha and Cornely, Oliver A. (2017). FungiScope (TM) - Global Emerging Fungal Infection Registry. Mycoses, 60 (8). S. 508 - 517. HOBOKEN: WILEY. ISSN 1439-0507

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Abstract

Rare invasive fungal diseases (IFD) are challenging for the treating physicians because of their unspecific clinical presentation, as well as the lack of standardised diagnostic and effective treatment strategies. Late onset of treatment and inappropriate medication is associated with high mortality, thus, urging the need for a better understanding of these diseases. The purpose of FungiScope (TM) is to continuously collect clinical information and specimens to improve the knowledge on epidemiology and eventually improve patient management of these orphan diseases. FungiScope (TM) was founded in 2003, and today, collaborators from 66 countries support the registry. So far, clinical data of 794 cases have been entered using a web-based approach. Within the growing network of experts, new collaborations developed, leading to several publications of comprehensive analyses of patient subgroups identified from the registry. Data extracted from FungiScope (TM) have also been used as the sole control group for the approval of a new antifungal drug. Due to the rarity of these diseases, a global registry is an appropriate method of pooling the scarce and scattered information. Joining efforts across medical specialities and geographical borders is key for researching rare IFD. Here, we describe the structure and management of the FungiScope (TM) registry.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Seidel, Danila UNSPECIFIED orcid.org/0000-0003-4388-3117 UNSPECIFIED Graeff, Luisa A. Duran UNSPECIFIED UNSPECIFIED UNSPECIFIED Vehreschild, Maria J. G. T. UNSPECIFIED UNSPECIFIED UNSPECIFIED Wisplinghoff, Hilmar UNSPECIFIED UNSPECIFIED UNSPECIFIED Ziegler, Maren UNSPECIFIED UNSPECIFIED UNSPECIFIED Vehreschild, J. Janne UNSPECIFIED UNSPECIFIED UNSPECIFIED Liss, Blasius UNSPECIFIED UNSPECIFIED UNSPECIFIED Hamprecht, Axel UNSPECIFIED orcid.org/0000-0003-1449-5780 UNSPECIFIED Koehler, Philipp UNSPECIFIED orcid.org/0000-0002-7386-7495 UNSPECIFIED Racil, Zdenek UNSPECIFIED UNSPECIFIED UNSPECIFIED Klimko, Nikolay UNSPECIFIED UNSPECIFIED UNSPECIFIED Sheppard, Donald C. UNSPECIFIED UNSPECIFIED UNSPECIFIED Herbrecht, Raoul UNSPECIFIED orcid.org/0000-0002-9381-4876 UNSPECIFIED Chowdhary, Anuradha UNSPECIFIED UNSPECIFIED UNSPECIFIED Cornely, Oliver A. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-223487
DOI:	10.1111/myc.12631
Journal or Publication Title:	Mycoses
Volume:	60
Number:	8
Page Range:	S. 508 - 517
Date:	2017
Publisher:	WILEY
Place of Publication:	HOBOKEN
ISSN:	1439-0507
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language JOINT CLINICAL GUIDELINES; TRANSPLANT RECIPIENTS; INVASIVE MUCORMYCOSIS; ESCMID-DAGGER; DIAGNOSIS; MANAGEMENT; DISEASES; ASPERGILLOSIS; SURVEILLANCE; FUSARIOSIS Multiple languages Dermatology; Mycology Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/22348