Universität zu Köln

Hessam, Schapoor ORCID: 0000-0001-6547-6577, Salem, Johannes, Bechara, Falk G., Haferkamp, Axel, Heidenreich, Axel, Paffenholz, Pia, Sand, Michael, Tsaur, Igor and Borgmann, Hendrik ORCID: 0000-0002-3955-564X (2017). Hidradenitis suppurativa gains increasing interest on World Wide Web: a source for patient information? Int. J. Dermatol., 56 (7). S. 726 - 733. HOBOKEN: WILEY. ISSN 1365-4632

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Abstract

BackgroundGathering health information from Internet websites is increasingly utilized by patients. No data exist about hidradenitis suppurativa (HS)-related online health information. Thus, we aimed to study the quality, popularity, readability, and timeliness of the most frequented websites on HS. MethodsGoogle Trends was used to evaluate the public interest in HS. An Internet search on Google was performed for the terms hidradenitis suppurativa, acne inversa, and Verneuil's disease. Readability scores, HONcode quality certification, Alexa popularity rank, and content were assessed. ResultsGoogle search queries on HS have steadily risen in the last 10 years. The website analysis revealed 39 unique websites, which were difficult to read. Ten websites (26%) had HONcode quality certification, and the median (IQR) Alexa popularity rank was 48871 (2333-361275). Thirteen websites (33%) yielded disease-specific photos with a median rating between quite useful and uncertain. A therapy option with adalimumab was mentioned on 11 websites (28%). ConclusionsIn addition to an increasing interest, we found a broad variation in the quality, readability, popularity, and timeliness of content on HS-related websites. Improvement of the quality and readability of HS-related websites is desirable to potentially raise disease awareness and contribute to an earlier presentation of patients suffering with undiagnosed HS.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Hessam, Schapoor UNSPECIFIED orcid.org/0000-0001-6547-6577 UNSPECIFIED Salem, Johannes UNSPECIFIED UNSPECIFIED UNSPECIFIED Bechara, Falk G. UNSPECIFIED UNSPECIFIED UNSPECIFIED Haferkamp, Axel UNSPECIFIED UNSPECIFIED UNSPECIFIED Heidenreich, Axel UNSPECIFIED UNSPECIFIED UNSPECIFIED Paffenholz, Pia UNSPECIFIED UNSPECIFIED UNSPECIFIED Sand, Michael UNSPECIFIED UNSPECIFIED UNSPECIFIED Tsaur, Igor UNSPECIFIED UNSPECIFIED UNSPECIFIED Borgmann, Hendrik UNSPECIFIED orcid.org/0000-0002-3955-564X UNSPECIFIED
URN:	urn:nbn:de:hbz:38-227040
DOI:	10.1111/ijd.13601
Journal or Publication Title:	Int. J. Dermatol.
Volume:	56
Number:	7
Page Range:	S. 726 - 733
Date:	2017
Publisher:	WILEY
Place of Publication:	HOBOKEN
ISSN:	1365-4632
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language BREAST-CANCER; READABILITY Multiple languages Dermatology Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/22704