Universität zu Köln

Halbach, Sarah Maria, Ernstmann, Nicole ORCID: 0000-0001-7685-6110, Kowalski, Christoph, Pfaff, Holger ORCID: 0000-0001-9154-6575, Pfoertner, Timo-Kolja, Wesselmann, Simone and Enders, Anna (2016). Unmet information needs and limited health literacy in newly diagnosed breast cancer patients over the course of cancer treatment. Patient Educ. Couns., 99 (9). S. 1511 - 1519. CLARE: ELSEVIER IRELAND LTD. ISSN 0738-3991

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Abstract

Objective: To investigate unmet information needs in newly diagnosed breast cancer patients over the course of cancer treatment and its association with health literacy. Methods: We present results from a prospective, multicenter cohort study (PIAT). Newly diagnosed breast cancer patients (N = 1060) were surveyed directly after breast cancer surgery, 10 and 40 weeks later. Pooled linear regression modeling was employed analyzing changes in unmet information needs over time and its association with health literacy. Results: Unmet information needs on side effects and medication and medical examination results and treatment options were high and increased during the first 10 weeks after breast cancer surgery. Considering health promotion and social issues, unmet information needs started high and decreased during post-treatment. Patients with limited health literacy had higher unmet information needs. Conclusion: Our results indicate a mismatch in information provision and breast cancer patients' information needs. Patients with limited health literacy may be at a distinct disadvantage in having their information needs met over the course of breast cancer treatment. Practice implications: Strategies are needed to reduce unmet information needs in breast cancer patients considering treatment-phase and health literacy and thereby enable them to better cope with their diseases. (C) 2016 Elsevier Ireland Ltd. All rights reserved.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Halbach, Sarah Maria UNSPECIFIED UNSPECIFIED UNSPECIFIED Ernstmann, Nicole UNSPECIFIED orcid.org/0000-0001-7685-6110 UNSPECIFIED Kowalski, Christoph UNSPECIFIED UNSPECIFIED UNSPECIFIED Pfaff, Holger UNSPECIFIED orcid.org/0000-0001-9154-6575 UNSPECIFIED Pfoertner, Timo-Kolja UNSPECIFIED UNSPECIFIED UNSPECIFIED Wesselmann, Simone UNSPECIFIED UNSPECIFIED UNSPECIFIED Enders, Anna UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-265959
DOI:	10.1016/j.pec.2016.06.028
Journal or Publication Title:	Patient Educ. Couns.
Volume:	99
Number:	9
Page Range:	S. 1511 - 1519
Date:	2016
Publisher:	ELSEVIER IRELAND LTD
Place of Publication:	CLARE
ISSN:	0738-3991
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language SUPPORTIVE CARE NEEDS; QUALITY-OF-LIFE; WOMEN; PREFERENCES; PROVISION; POPULATION; PEOPLE Multiple languages Public, Environmental & Occupational Health; Social Sciences, Interdisciplinary Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/26595