Halbach, Sarah Maria, Ernstmann, Nicole ORCID: 0000-0001-7685-6110, Kowalski, Christoph, Pfaff, Holger ORCID: 0000-0001-9154-6575, Pfoertner, Timo-Kolja, Wesselmann, Simone and Enders, Anna (2016). Unmet information needs and limited health literacy in newly diagnosed breast cancer patients over the course of cancer treatment. Patient Educ. Couns., 99 (9). S. 1511 - 1519. CLARE: ELSEVIER IRELAND LTD. ISSN 0738-3991

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Abstract

Objective: To investigate unmet information needs in newly diagnosed breast cancer patients over the course of cancer treatment and its association with health literacy. Methods: We present results from a prospective, multicenter cohort study (PIAT). Newly diagnosed breast cancer patients (N = 1060) were surveyed directly after breast cancer surgery, 10 and 40 weeks later. Pooled linear regression modeling was employed analyzing changes in unmet information needs over time and its association with health literacy. Results: Unmet information needs on side effects and medication and medical examination results and treatment options were high and increased during the first 10 weeks after breast cancer surgery. Considering health promotion and social issues, unmet information needs started high and decreased during post-treatment. Patients with limited health literacy had higher unmet information needs. Conclusion: Our results indicate a mismatch in information provision and breast cancer patients' information needs. Patients with limited health literacy may be at a distinct disadvantage in having their information needs met over the course of breast cancer treatment. Practice implications: Strategies are needed to reduce unmet information needs in breast cancer patients considering treatment-phase and health literacy and thereby enable them to better cope with their diseases. (C) 2016 Elsevier Ireland Ltd. All rights reserved.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Halbach, Sarah MariaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ernstmann, NicoleUNSPECIFIEDorcid.org/0000-0001-7685-6110UNSPECIFIED
Kowalski, ChristophUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pfaff, HolgerUNSPECIFIEDorcid.org/0000-0001-9154-6575UNSPECIFIED
Pfoertner, Timo-KoljaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wesselmann, SimoneUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Enders, AnnaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-265959
DOI: 10.1016/j.pec.2016.06.028
Journal or Publication Title: Patient Educ. Couns.
Volume: 99
Number: 9
Page Range: S. 1511 - 1519
Date: 2016
Publisher: ELSEVIER IRELAND LTD
Place of Publication: CLARE
ISSN: 0738-3991
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
SUPPORTIVE CARE NEEDS; QUALITY-OF-LIFE; WOMEN; PREFERENCES; PROVISION; POPULATION; PEOPLEMultiple languages
Public, Environmental & Occupational Health; Social Sciences, InterdisciplinaryMultiple languages
Refereed: Yes
URI: http://kups.ub.uni-koeln.de/id/eprint/26595

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