Universität zu Köln

Simon, Steffen T., Weingaertner, Vera, Higginson, Irene J., Benalia, Hamid, Gysels, Marjolein, Murtagh, Fliss E. M., Spicer, James ORCID: 0000-0003-3732-8491, Linde, Philipp, Voltz, Raymond and Bausewein, Claudia ORCID: 0000-0002-0958-3041 (2016). I Can Breathe Again!'' Patients' Self-Management Strategies for Episodic Breathlessness in Advanced Disease, Derived From Qualitative Interviews. J. Pain Symptom Manage., 52 (2). S. 228 - 235. NEW YORK: ELSEVIER SCIENCE INC. ISSN 1873-6513

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Abstract

Context. Episodic breathlessness causes additional distress to breathless patients with advanced disease, but management is still insufficient and there is a lack of knowledge on effective coping strategies. Objectives. The aim was to explore patients' self-management strategies for episodic breathlessness. Methods. In-depth interviews with patients suffering from episodic breathlessness as a result of chronic heart failure, chronic obstructive pulmonary disease, lung cancer, or motor neuron disease were conducted. Interviews were transcribed verbatim and analyzed guided by the analytic hierarchy of Framework analysis. Results. A total of 51 participants were interviewed (15 chronic heart failure, 14 chronic obstructive pulmonary disease, 13 lung cancer, and nine motor neuron disease; age, mean [SD], 68 [12], 41% women, median Karnofsky index 60%). They described six main strategies for coping with episodes of breathlessness: reduction of physical exertion, cognitive and psychological strategies, breathing techniques and positions, air and oxygen, drugs and medical devices, and environmental and other strategies. Some strategies were used in an opposing way, e.g., concentrating on the breathing vs. distraction from any thoughts of breathlessness or laying down flat vs. standing up and raising hands. Conclusion. Patients used a number of different strategies to cope with episodic breathlessness, adding more detailed understanding of existing strategies for breathlessness. The findings, therefore, may provide a valuable aid for health care providers, affected patients, and their relatives. (C) 2016 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Simon, Steffen T. UNSPECIFIED UNSPECIFIED UNSPECIFIED Weingaertner, Vera UNSPECIFIED UNSPECIFIED UNSPECIFIED Higginson, Irene J. UNSPECIFIED UNSPECIFIED UNSPECIFIED Benalia, Hamid UNSPECIFIED UNSPECIFIED UNSPECIFIED Gysels, Marjolein UNSPECIFIED UNSPECIFIED UNSPECIFIED Murtagh, Fliss E. M. UNSPECIFIED UNSPECIFIED UNSPECIFIED Spicer, James UNSPECIFIED orcid.org/0000-0003-3732-8491 UNSPECIFIED Linde, Philipp UNSPECIFIED UNSPECIFIED UNSPECIFIED Voltz, Raymond UNSPECIFIED UNSPECIFIED UNSPECIFIED Bausewein, Claudia UNSPECIFIED orcid.org/0000-0002-0958-3041 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-268985
DOI:	10.1016/j.jpainsymman.2016.02.016
Journal or Publication Title:	J. Pain Symptom Manage.
Volume:	52
Number:	2
Page Range:	S. 228 - 235
Date:	2016
Publisher:	ELSEVIER SCIENCE INC
Place of Publication:	NEW YORK
ISSN:	1873-6513
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language OBSTRUCTIVE PULMONARY-DISEASE; RANDOMIZED CONTROLLED-TRIAL; LUNG-CANCER; DYSPNEA; SERVICE Multiple languages Health Care Sciences & Services; Medicine, General & Internal; Clinical Neurology Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/26898