Scholten, Nadine ORCID: 0000-0002-7793-7745, Ihle, Peter, Pfaff, Holger, Albus, C., Jessen, J., Ansmann, L., Karbach, U., Kuntz, L., Rietz, C., Schubert, I, Schulz-Nieswandt, F., Stock, S., Strupp, J. and Voltz, R. . Sustainable Infrastructure for Health Services Research: Development of a Regional SHI Routine Database. Gesundheitswesen. STUTTGART: GEORG THIEME VERLAG KG. ISSN 1439-4421

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Abstract

Aim The scientific use of SHI routine data is increasing, especially in the field of health services research. This also raises new questions with regard to the development of databases, which make it possible to store these data for longitudinal analyses over a longer period of time and by combining data from different SHI companies. On the basis of the experience gained in setting up the CoRe-Net database, we want to show that it is possible to install such a research infrastructure and make it usable in the long term. Methodology/Results On the basis of the current regulatory framework (e.g. the added specification of 75 SGB X) and taking into account strict data protection criteria, it is possible to set up a database covering several health insurance funds: In CoRe-Net, a pseudonymisation centre and a trust centre were implemented for this purpose. At the same time, multiple pseudonymisation was carried out using a one-way hash procedure. Data analysis are only possible after approval by the participating health insurance funds and if valid approval has been obtained from relevant ethics committees. Conclusion The amendment of 75 SGB X in 2018 creates a legal framework for the collection and storage of SHI routine data within the framework of a research project for future questions within a defined research area.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Scholten, NadineUNSPECIFIEDorcid.org/0000-0002-7793-7745UNSPECIFIED
Ihle, PeterUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pfaff, HolgerUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Albus, C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Jessen, J.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ansmann, L.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Karbach, U.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kuntz, L.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Rietz, C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schubert, IUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schulz-Nieswandt, F.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Stock, S.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Strupp, J.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Voltz, R.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-311619
DOI: 10.1055/a-1205-0751
Journal or Publication Title: Gesundheitswesen
Publisher: GEORG THIEME VERLAG KG
Place of Publication: STUTTGART
ISSN: 1439-4421
Language: German
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
SECONDARY DATA; REGISTRY DATA; CLAIMS DATA; CONSENT; LINKAGE; COHORTMultiple languages
Public, Environmental & Occupational HealthMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/31161

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