Siggelkow, Heide, Kornak, Uwe, Oheim, Ralf, Barvencik, Florian, Semler, Oliver, Obermayer-Pietsch, Barbara, Jakob, Franz, Seefried, Lothar, Hofmann, Christine, Lehmann, Gabriele, Jundt, Gernot, Brenner, Rolf, Meier, Christian, Gluer, Claus C. and Grasemann, Corinna (2020). Founding of the German speaking Network for Rare Bone Diseases NetsOs - through an Initiative of the German Society of Osteology (DGO). Osteologie, 29 (4). S. 259 - 266. STUTTGART: GEORG THIEME VERLAG KG. ISSN 2567-5818

Full text not available from this repository.

Abstract

A significant proportion of rare diseases affect the musculoskeletal system. Due to growing disease awareness, increasingly individualized medicine and the availability of new innovative drugs an expanding need for expert knowledge and networking in the field of rare osteological diseases has arisen. In Europe, the European Reference Networks (ERN) were established in 2017 to address these tasks in a patient centered way. In the same year the German Society for Osteology (DGO) started an initiative to synergize and develop existing activities in the field of Rare Bone Diseases in German-speaking countries. As a result, the Network on Rare Osteopathologies (NetsOs) was founded in November 2018 with specialists from a wide range of disciplines from Germany, Austria and Switzerland. NetsOs encompasses both, an expert-network with clinical and scientific experts from Austria, Germany and Switzerland as well as an expert-center based network in Germany. The latter connects clinical centers with special expertise, so-called B-centers, for rare osteological diseases. NetsOs aims to improve and support diagnostic procedures, lifelong care and monitoring for patients who are affected by a rare bone and mineral condition together with the patient associations. Additional focus lies on training and education in the field of rare osteological diseases. In order to achieve these goals, members of the network are involved in clinical care, clinical and basic research and teaching for rare bone and skeletal diseases and are available for consutls for colleagues. Involvement in national, European and international clinical and scientific networking, interaction with centers for rare diseases, scientific societies, ERNs and European registers is established through the involvement of the members of NetsOs in these structures.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Siggelkow, HeideUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kornak, UweUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Oheim, RalfUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Barvencik, FlorianUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Semler, OliverUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Obermayer-Pietsch, BarbaraUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Jakob, FranzUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Seefried, LotharUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hofmann, ChristineUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Lehmann, GabrieleUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Jundt, GernotUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Brenner, RolfUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Meier, ChristianUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gluer, Claus C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Grasemann, CorinnaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-313185
DOI: 10.1055/a-1245-7248
Journal or Publication Title: Osteologie
Volume: 29
Number: 4
Page Range: S. 259 - 266
Date: 2020
Publisher: GEORG THIEME VERLAG KG
Place of Publication: STUTTGART
ISSN: 2567-5818
Language: German
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
OrthopedicsMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/31318

Downloads

Downloads per month over past year

Altmetric

Export

Actions (login required)

View Item View Item