Universität zu Köln

Higginson, Irene J., Gomes, Barbara ORCID: 0000-0001-8149-1806, Calanzani, Natalia ORCID: 0000-0002-5068-2543, Gao, Wei, Bausewein, Claudia ORCID: 0000-0002-0958-3041, Daveson, Barbara A., Deliens, Luc ORCID: 0000-0002-8158-2422, Ferreira, Pedro L., Toscani, Franco, Gysels, Marjolein, Ceulemans, Lucas, Simon, Steffen T., Cohen, Joachim ORCID: 0000-0002-7224-9476 and Harding, Richard ORCID: 0000-0001-9653-8689 (2014). Priorities for treatment, care and information if faced with serious illness: A comparative population-based survey in seven European countries. Palliat. Med., 28 (2). S. 101 - 111. LONDON: SAGE PUBLICATIONS LTD. ISSN 1477-030X

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Abstract

Background: Health-care costs are growing, with little population-based data about people's priorities for end-of-life care, to guide service development and aid discussions. Aim: We examined variations in people's priorities for treatment, care and information across seven European countries. Design: Telephone survey of a random sample of households; we asked respondents their priorities if faced with a serious illness, like cancer, with limited time to live' and used multivariable logistic regressions to identify associated factors. Setting/participants: Members of the general public aged 16 years residing in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. Results: In total, 9344 individuals were interviewed. Most people chose improve quality of life for the time they had left', ranging from 57% (95% confidence interval: 55%-60%, Italy) to 81% (95% confidence interval: 79%-83%, Spain). Only 2% (95% confidence interval: 1%-3%, England) to 6% (95% confidence interval: 4%-7%, Flanders) said extending life was most important, and 15% (95% confidence interval: 13%-17%, Spain) to 40% (95% confidence interval: 37%-43%, Italy) said quality and extension were equally important. Prioritising quality of life was associated with higher education in all countries (odds ratio = 1.3 (Flanders) to 7.9 (Italy)), experience of caregiving or bereavement (England, Germany, Portugal), prioritising pain/symptom control over having a positive attitude and preferring death in a hospice/palliative care unit. Those prioritising extending life had the highest home death preference of all groups. Health status did not affect priorities. Conclusions: Across all countries, extending life was prioritised by a minority, regardless of health status. Treatment and care needs to be reoriented with patient education and palliative care becoming mainstream for serious conditions such as cancer.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Higginson, Irene J. UNSPECIFIED UNSPECIFIED UNSPECIFIED Gomes, Barbara UNSPECIFIED orcid.org/0000-0001-8149-1806 UNSPECIFIED Calanzani, Natalia UNSPECIFIED orcid.org/0000-0002-5068-2543 UNSPECIFIED Gao, Wei UNSPECIFIED UNSPECIFIED UNSPECIFIED Bausewein, Claudia UNSPECIFIED orcid.org/0000-0002-0958-3041 UNSPECIFIED Daveson, Barbara A. UNSPECIFIED UNSPECIFIED UNSPECIFIED Deliens, Luc UNSPECIFIED orcid.org/0000-0002-8158-2422 UNSPECIFIED Ferreira, Pedro L. UNSPECIFIED UNSPECIFIED UNSPECIFIED Toscani, Franco UNSPECIFIED UNSPECIFIED UNSPECIFIED Gysels, Marjolein UNSPECIFIED UNSPECIFIED UNSPECIFIED Ceulemans, Lucas UNSPECIFIED UNSPECIFIED UNSPECIFIED Simon, Steffen T. UNSPECIFIED UNSPECIFIED UNSPECIFIED Cohen, Joachim UNSPECIFIED orcid.org/0000-0002-7224-9476 UNSPECIFIED Harding, Richard UNSPECIFIED orcid.org/0000-0001-9653-8689 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-447398
DOI:	10.1177/0269216313488989
Journal or Publication Title:	Palliat. Med.
Volume:	28
Number:	2
Page Range:	S. 101 - 111
Date:	2014
Publisher:	SAGE PUBLICATIONS LTD
Place of Publication:	LONDON
ISSN:	1477-030X
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language END-OF-LIFE; PALLIATIVE CARE; ADVANCED CANCER; RESPONSE RATES; ATTITUDES; PREFERENCES; DEATH; AWARENESS; PORTUGAL; QUALITY Multiple languages Health Care Sciences & Services; Public, Environmental & Occupational Health; Medicine, General & Internal Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/44739