Higginson, Irene J., Gomes, Barbara ORCID: 0000-0001-8149-1806, Calanzani, Natalia ORCID: 0000-0002-5068-2543, Gao, Wei, Bausewein, Claudia ORCID: 0000-0002-0958-3041, Daveson, Barbara A., Deliens, Luc ORCID: 0000-0002-8158-2422, Ferreira, Pedro L., Toscani, Franco, Gysels, Marjolein, Ceulemans, Lucas, Simon, Steffen T., Cohen, Joachim ORCID: 0000-0002-7224-9476 and Harding, Richard ORCID: 0000-0001-9653-8689 (2014). Priorities for treatment, care and information if faced with serious illness: A comparative population-based survey in seven European countries. Palliat. Med., 28 (2). S. 101 - 111. LONDON: SAGE PUBLICATIONS LTD. ISSN 1477-030X

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Abstract

Background: Health-care costs are growing, with little population-based data about people's priorities for end-of-life care, to guide service development and aid discussions. Aim: We examined variations in people's priorities for treatment, care and information across seven European countries. Design: Telephone survey of a random sample of households; we asked respondents their priorities if faced with a serious illness, like cancer, with limited time to live' and used multivariable logistic regressions to identify associated factors. Setting/participants: Members of the general public aged 16 years residing in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. Results: In total, 9344 individuals were interviewed. Most people chose improve quality of life for the time they had left', ranging from 57% (95% confidence interval: 55%-60%, Italy) to 81% (95% confidence interval: 79%-83%, Spain). Only 2% (95% confidence interval: 1%-3%, England) to 6% (95% confidence interval: 4%-7%, Flanders) said extending life was most important, and 15% (95% confidence interval: 13%-17%, Spain) to 40% (95% confidence interval: 37%-43%, Italy) said quality and extension were equally important. Prioritising quality of life was associated with higher education in all countries (odds ratio = 1.3 (Flanders) to 7.9 (Italy)), experience of caregiving or bereavement (England, Germany, Portugal), prioritising pain/symptom control over having a positive attitude and preferring death in a hospice/palliative care unit. Those prioritising extending life had the highest home death preference of all groups. Health status did not affect priorities. Conclusions: Across all countries, extending life was prioritised by a minority, regardless of health status. Treatment and care needs to be reoriented with patient education and palliative care becoming mainstream for serious conditions such as cancer.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Higginson, Irene J.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gomes, BarbaraUNSPECIFIEDorcid.org/0000-0001-8149-1806UNSPECIFIED
Calanzani, NataliaUNSPECIFIEDorcid.org/0000-0002-5068-2543UNSPECIFIED
Gao, WeiUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bausewein, ClaudiaUNSPECIFIEDorcid.org/0000-0002-0958-3041UNSPECIFIED
Daveson, Barbara A.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Deliens, LucUNSPECIFIEDorcid.org/0000-0002-8158-2422UNSPECIFIED
Ferreira, Pedro L.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Toscani, FrancoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gysels, MarjoleinUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ceulemans, LucasUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Simon, Steffen T.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Cohen, JoachimUNSPECIFIEDorcid.org/0000-0002-7224-9476UNSPECIFIED
Harding, RichardUNSPECIFIEDorcid.org/0000-0001-9653-8689UNSPECIFIED
URN: urn:nbn:de:hbz:38-447398
DOI: 10.1177/0269216313488989
Journal or Publication Title: Palliat. Med.
Volume: 28
Number: 2
Page Range: S. 101 - 111
Date: 2014
Publisher: SAGE PUBLICATIONS LTD
Place of Publication: LONDON
ISSN: 1477-030X
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
END-OF-LIFE; PALLIATIVE CARE; ADVANCED CANCER; RESPONSE RATES; ATTITUDES; PREFERENCES; DEATH; AWARENESS; PORTUGAL; QUALITYMultiple languages
Health Care Sciences & Services; Public, Environmental & Occupational Health; Medicine, General & InternalMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/44739

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