Universität zu Köln

Grosjean, Sylvie ORCID: 0000-0002-4568-0500, Farre, Jordi Coma, Gal, Ota, Laffan, Aoife, Sendra, Anna, Stuempel, Johanne and Mestre, Tiago (2021). Co-designing an Integrated Care Network With People Living With Parkinson's Disease: From Patients' Narratives to Trajectory Analysis. Qual. Health Res., 31 (14). S. 2585 - 2602. THOUSAND OAKS: SAGE PUBLICATIONS INC. ISSN 1552-7557

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Abstract

An integrated care model for people living with Parkinson's disease (PD) offers the promise of meeting complex care needs in a person-centered way that addresses fragmentation and improves quality of life. The purpose of our research was to co-design a care delivery model that supports both social and medical care from the perspective of patients and care partners. In the first step of our co-design approach, participants from five countries were invited to share their experiences of living with PD during a narrative interview. A qualitative analysis of these narrative interviews based on the Corbin and Strauss model was done to map out patients' trajectories. Three typical trajectories were identified: (a) the unpredictable trajectory, (b) the situated trajectory, and (c) the demanding trajectory. Based on the analysis of these trajectories, we were able to integrate various patient experiences into the design of an integrated care network.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Grosjean, Sylvie UNSPECIFIED orcid.org/0000-0002-4568-0500 UNSPECIFIED Farre, Jordi Coma UNSPECIFIED UNSPECIFIED UNSPECIFIED Gal, Ota UNSPECIFIED UNSPECIFIED UNSPECIFIED Laffan, Aoife UNSPECIFIED UNSPECIFIED UNSPECIFIED Sendra, Anna UNSPECIFIED UNSPECIFIED UNSPECIFIED Stuempel, Johanne UNSPECIFIED UNSPECIFIED UNSPECIFIED Mestre, Tiago UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-597011
DOI:	10.1177/10497323211042605
Journal or Publication Title:	Qual. Health Res.
Volume:	31
Number:	14
Page Range:	S. 2585 - 2602
Date:	2021
Publisher:	SAGE PUBLICATIONS INC
Place of Publication:	THOUSAND OAKS
ISSN:	1552-7557
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language PARTICIPATORY DESIGN; HEALTH-CARE; PERSPECTIVE; MANAGEMENT; INTERVIEWS; SERVICES Multiple languages Public, Environmental & Occupational Health; Information Science & Library Science; Social Sciences, Interdisciplinary; Social Sciences, Biomedical Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/59701