Dins, Timo ORCID: 0000-0003-2758-5275 and Keeley, Caren ORCID: 0000-0001-8310-0485 (2022). Recognising Basic Health Literacy Capabilities: An Explorative Study on the Relevance of Health-Related Information in the Support of People with Profound Intellectual and Multiple Disabilities. Int. J. Environ. Res. Public Health, 19 (24). BASEL: MDPI. ISSN 1660-4601

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Background: People with profound intellectual disabilities represent a vulnerable and heterogeneous population whose health-related needs and questions often remain unheard. One reason for this is that they are usually unable to participate in verbal communication. However, there is also a lack of suitable approaches to communicate health-related information to them according to their capabilities. The research presented in this paper addresses this gap. Methods: Following grounded theory methodology, we used a multimethod approach. Based on a theoretical analysis, a Delphi study (n = 14) was conducted as a starting point to map the research field. In a second step, these findings were incorporated into an online survey targeting disability care professionals (n = 111). Three field studies supplemented the data, encompassing a variety of ethnographic methods. Results: People with PIMD have basic health-related capabilities that can improve their health literacy. Nevertheless, their support environments have to take over many health literacy-related requirements by proxy or substitution. One of the most important tasks is to engage health information in an individualised way. Conclusions: The findings underline the importance of focusing on more basic capabilities and intersubjective approaches in health literacy research and practice, especially regarding new perspectives on the inclusion of previously marginalised populations (such as people with PIMD).

Item Type: Journal Article
CreatorsEmailORCIDORCID Put Code
Dins, TimoUNSPECIFIEDorcid.org/0000-0003-2758-5275UNSPECIFIED
Keeley, Carenckeeley@uni-koeln.deorcid.org/0000-0001-8310-0485UNSPECIFIED
URN: urn:nbn:de:hbz:38-657678
DOI: 10.3390/ijerph192416874
Journal or Publication Title: Int. J. Environ. Res. Public Health
Volume: 19
Number: 24
Date: 2022
Publisher: MDPI
Place of Publication: BASEL
ISSN: 1660-4601
Language: English
Faculty: Faculty of Human Sciences
Divisions: Faculty of Human Sciences > Department Heilpädagogik und Rehabilitation
Subjects: Education
Medical sciences Medicine
Uncontrolled Keywords:
ADULTS; METHODOLOGYMultiple languages
Environmental Sciences; Public, Environmental & Occupational HealthMultiple languages
Refereed: Yes
URI: http://kups.ub.uni-koeln.de/id/eprint/65767


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