Universität zu Köln

Rackerseder, Juliane, Hornbach, Carolin ORCID: 0000-0001-8271-8339, Dicks, Peter, Kerek-Bodden, Hedy and Krieger, Theresia ORCID: 0000-0002-7414-7318 (2022). Designing a Patient-Friendly Website for Newly Diagnosed Cancer Patients with the Participatory Health Research Approach. Int. J. Environ. Res. Public Health, 19 (4). BASEL: MDPI. ISSN 1660-4601

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Abstract

High-quality and user-friendly patient information material (PIM) is essential for understanding and accepting a new care programme. When optimising the PIM of the integrated, cross-sectoral psycho-oncological (isPO) care programme, the design of the fifth element of the patient information strategy-the patient-friendly website-was still pending. In this paper, the iterative design process of the patient-friendly isPO website is described. We applied the participatory health research (PHR) approach to enable high levels of participation of its respective end-users (e.g., cancer survivors), service providers, and experts. The design included six steps: (1) initiation, (2) planning, (3) initial idea exploration, (4) creation of a first working version, (5) three optimisation loops, and (6) dissemination. An exploratory mixed-methods design has been used. Qualitative data collection included document analysis, interviews, and participatory action research (PAR) loops with focus groups. Finally, the quality of the newly designed website was quantitatively assessed with the UPIM-Check, a user-friendly instrument for assessing and optimising PIM. The PHR approach was indispensable for the design of our needs-oriented, patient-friendly website. Participants' high levels of participation strongly contributed to the products' quality. The final descriptive statistical evaluation shows that the final website was rated very good on average by its end-users.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Rackerseder, Juliane UNSPECIFIED UNSPECIFIED UNSPECIFIED Hornbach, Carolin UNSPECIFIED orcid.org/0000-0001-8271-8339 UNSPECIFIED Dicks, Peter UNSPECIFIED UNSPECIFIED UNSPECIFIED Kerek-Bodden, Hedy UNSPECIFIED UNSPECIFIED UNSPECIFIED Krieger, Theresia UNSPECIFIED orcid.org/0000-0002-7414-7318 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-668860
DOI:	10.3390/ijerph19041969
Journal or Publication Title:	Int. J. Environ. Res. Public Health
Volume:	19
Number:	4
Date:	2022
Publisher:	MDPI
Place of Publication:	BASEL
ISSN:	1660-4601
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language INFORMATION; QUALITY; CARE; DISCERN Multiple languages Environmental Sciences; Public, Environmental & Occupational Health Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/66886