Muente, Catharina, Folkerts, Ann-Kristin, Kalbe, Elke, Thieken, Franziska, Assmann, Laura-Elisa, Widritzki, Maria, Eggers, Carsten, Pedrosa, David and Wilhelm, Marcel ORCID: 0000-0001-8055-9346 (2022). Supporting Relatives Prior to Caregiver Burden-Preventive E-Mental Health Short Intervention for Family Members of Individuals with Parkinsonism in an Early Phase of the Disease: Protocol for a Feasibility Study. Brain Sci., 12 (4). BASEL: MDPI. ISSN 2076-3425

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Abstract

Research on support for relatives of patients with Parkinsonism has mainly focused on caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support program for relatives of patients with Parkinsonism. It specifically focuses on family members of patients who are in an early phase of the disease, are not currently caregiving, and have not yet developed distress symptoms. It includes a telemedicine-based, 6-week preventive psychological short intervention (PPSI). The main objective of this feasibility mixed-methods study is to specify the demand for an early, low-threshold, and low-cost short intervention and to collect feedback based on qualitative and quantitative data of N = 20 relatives. Secondary objectives are an evaluation of the effects of the intervention and an analysis of the study design. Future directions are to further develop the PPSI using these data. This study can serve as a basis for future randomized controlled studies on this intervention, which might fill an important gap in clinical supply.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Muente, CatharinaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Folkerts, Ann-KristinUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kalbe, ElkeUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Thieken, FranziskaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Assmann, Laura-ElisaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Widritzki, MariaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Eggers, CarstenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pedrosa, DavidUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wilhelm, MarcelUNSPECIFIEDorcid.org/0000-0001-8055-9346UNSPECIFIED
URN: urn:nbn:de:hbz:38-675066
DOI: 10.3390/brainsci12040442
Journal or Publication Title: Brain Sci.
Volume: 12
Number: 4
Date: 2022
Publisher: MDPI
Place of Publication: BASEL
ISSN: 2076-3425
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
NURSING-HOME PLACEMENT; QUALITY-OF-LIFE; DEPRESSION; THERAPY; PEOPLE; CARE; QUESTIONNAIRE; RELIABILITY; POPULATION; EDUCATIONMultiple languages
NeurosciencesMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/67506

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