Schladitz, Katja ORCID: 0000-0001-7867-0766, Weitzel, Elena C., Loebner, Margrit, Soltmann, Bettina, Jessen, Frank, Schmitt, Jochen ORCID: 0000-0003-0264-0960, Pfennig, Andrea, Riedel-Heller, Steffi G. and Guehne, Uta (2022). Demands on Health Information and Clinical Practice Guidelines for Patients from the Perspective of Adults with Mental Illness and Family Members: A Qualitative Study with In-Depth Interviews. Int. J. Environ. Res. Public Health, 19 (21). BASEL: MDPI. ISSN 1660-4601

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Abstract

(1) Background: Patient health information promote health literacy. Patient guidelines as a sub group reflect the current evidence about illnesses and treatment options adapted to the needs of laypersons. Little is known about factors promoting and hindering their use by people affected by mental illness and their relatives. (2) Methods: Telephone interviews (N = 15; n = 4 adults affected by mental illness, n = 5 relatives, n = 6 both applicable) were conducted according to the Sorensen model of health literacy. Data were recorded, transcribed and content-analyzed following Mayring. (3) Results: Health information is used regularly by individuals affected by mental illness and their relatives, but patient guidelines are largely unknown. Yet, there is a great willingness to use them. Main barriers are a lack of statistical knowledge, the complexity of health-related topics and cognitive impairment sometimes accompanying mental illnesses. Target group-oriented adaptation as well as transparent and even-handed presentation of (dis-)advantages of treatment options can increase trust. (4) Conclusions: Health information and guidelines can help affected persons and relatives to make treatment decisions by conveying unbiased, up-to-date knowledge. Target group-specific adaptations should be made for psychiatric illnesses and features specific to mental illnesses compared to physical illnesses should be included. Clinical practice guidelines must be distributed more widely to increase their impact.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Schladitz, KatjaUNSPECIFIEDorcid.org/0000-0001-7867-0766UNSPECIFIED
Weitzel, Elena C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Loebner, MargritUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Soltmann, BettinaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Jessen, FrankUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schmitt, JochenUNSPECIFIEDorcid.org/0000-0003-0264-0960UNSPECIFIED
Pfennig, AndreaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Riedel-Heller, Steffi G.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Guehne, UtaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-676882
DOI: 10.3390/ijerph192114262
Journal or Publication Title: Int. J. Environ. Res. Public Health
Volume: 19
Number: 21
Date: 2022
Publisher: MDPI
Place of Publication: BASEL
ISSN: 1660-4601
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
LITERACY; STRATEGIES; DISORDERS; SERVICES; ONSET; INTERVENTION; INVOLVEMENT; ATTITUDES; BARRIERS; SEEKINGMultiple languages
Environmental Sciences; Public, Environmental & Occupational HealthMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/67688

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