Universität zu Köln

Alashkar, Ferras ORCID: 0000-0001-7530-8892, Aramayo-Singelmann, Carmen, Boll, Janine, Hoferer, Annette, Jarisch, Andrea, Kamal, Haytham, Oevermann, Lena, Schwarz, Michaela and Cario, Holger (2022). Transition in Sickle Cell Disease (SCD): A German Consensus Recommendation. J. Pers. Med., 12 (7). BASEL: MDPI. ISSN 2075-4426

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Abstract

Sickle cell disease (SCD) is considered a rare disease in Germany. Due to the increasing prevalence, the acute and chronic morbidities associated with the disease and the sharp increase in the mortality rate of young adults, a need-based transition structure for patients with SCD in Germany is explicitly required. This is the first multicenter German consensus statement addressing the importance of implementing a standardized transition guideline that allows adolescents and young adults to safely transition from pediatric to adult care. Early identification of medical needs and intervention remains important in the context of chronic diseases. Effective measures can improve health care in general, as they lead to a reduction in disease and the consequential economic burden. It is noteworthy that improving structural barriers remains a key challenge even in highly developed countries such as Germany. Inclusion of these transition services for patients with SCD into the regular care of chronically ill adolescents and young adults should be ensured, as well as the coverage of costs associated with a structured transition process.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Alashkar, Ferras UNSPECIFIED orcid.org/0000-0001-7530-8892 UNSPECIFIED Aramayo-Singelmann, Carmen UNSPECIFIED UNSPECIFIED UNSPECIFIED Boll, Janine UNSPECIFIED UNSPECIFIED UNSPECIFIED Hoferer, Annette UNSPECIFIED UNSPECIFIED UNSPECIFIED Jarisch, Andrea UNSPECIFIED UNSPECIFIED UNSPECIFIED Kamal, Haytham UNSPECIFIED UNSPECIFIED UNSPECIFIED Oevermann, Lena UNSPECIFIED UNSPECIFIED UNSPECIFIED Schwarz, Michaela UNSPECIFIED UNSPECIFIED UNSPECIFIED Cario, Holger UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-689479
DOI:	10.3390/jpm12071156
Journal or Publication Title:	J. Pers. Med.
Volume:	12
Number:	7
Date:	2022
Publisher:	MDPI
Place of Publication:	BASEL
ISSN:	2075-4426
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language ADULT HEALTH-CARE; HEMOGLOBINOPATHIES; CHILD; ADOLESCENTS; READINESS Multiple languages Health Care Sciences & Services; Medicine, General & Internal Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/68947