Universität zu Köln

van Munster, Marlena, Stumpel, Johanne, Thieken, Franziska, Ratajczak, Florin ORCID: 0000-0003-3246-5032, Rascol, Olivier, Fabbri, Margherita, Clemens, Timo, Czabanowska, Katarzyna, Mestre, Tiago A. and Pedrosa, David J. ORCID: 0000-0002-5403-1959 (2022). The Role of Parkinson Nurses for Personalizing Care in Parkinson's Disease: A Systematic Review and Meta-Analysis. J. Parkinsons Dis., 12 (6). S. 1807 - 1832. AMSTERDAM: IOS PRESS. ISSN 1877-718X

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Abstract

Background: Quality of life (QoL) of persons with Parkinson's disease (PD) is diminished by (non-)motor symptoms, that require personalized care. Parkinson Nurses (PN) may be pivotal promoting tailored care offerings. This systematic review and meta-analysis investigates PD care models and aims at furnishing current concepts of PN to offer personalized care. Objective: The purpose of this study is to identify the various roles and functions that PN may hold for personalized PD care. Methods: We performed a systematic literature review, utilizing: PubMed, Web of Science, The Cochrane Library, and PsycINFO. The review qualitatively evaluated articles, which described personalized care models involving PNs and was guided by the personalized care management model. A meta-analysis compared patient-reported QoL (quantified using the 39-item Parkinson's Disease Questionnaire) between personalized care interventions involving PN versus standard care with. Results: Twenty-seven publications were identified, including six randomized, controlled trials ascertaining with health related QoL (n = 1830 PwPs). The qualitative evaluation revealed that PN contribute to all aspects of personalized care. The meta-analysis showed no improved QoL in personalized care models compared to standard care, thought a great heterogeneity among study design and interventions was outlined (Standardized Mean Difference = -0.8935; 95% Confidence Interval, -2.1177 to 0.3307; z = -1.43, p = 0.1526). Conclusion: PN fulfil important functions in personalized PD care. For the future, a clear role definition will be necessary to adjust training for PN across healthcare systems and care settings but especially to realize their full potential for PD care.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code van Munster, Marlena UNSPECIFIED UNSPECIFIED UNSPECIFIED Stumpel, Johanne UNSPECIFIED UNSPECIFIED UNSPECIFIED Thieken, Franziska UNSPECIFIED UNSPECIFIED UNSPECIFIED Ratajczak, Florin UNSPECIFIED orcid.org/0000-0003-3246-5032 UNSPECIFIED Rascol, Olivier UNSPECIFIED UNSPECIFIED UNSPECIFIED Fabbri, Margherita UNSPECIFIED UNSPECIFIED UNSPECIFIED Clemens, Timo UNSPECIFIED UNSPECIFIED UNSPECIFIED Czabanowska, Katarzyna UNSPECIFIED UNSPECIFIED UNSPECIFIED Mestre, Tiago A. UNSPECIFIED UNSPECIFIED UNSPECIFIED Pedrosa, David J. UNSPECIFIED orcid.org/0000-0002-5403-1959 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-692800
DOI:	10.3233/JPD-223215
Journal or Publication Title:	J. Parkinsons Dis.
Volume:	12
Number:	6
Page Range:	S. 1807 - 1832
Date:	2022
Publisher:	IOS PRESS
Place of Publication:	AMSTERDAM
ISSN:	1877-718X
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language QUALITY-OF-LIFE; MULTIDISCIPLINARY REHABILITATION; NURSING INTERVENTION; CONTROLLED-TRIAL; PEOPLE; SPECIALISTS; PROGRAM; MANAGEMENT; DISORDERS; DIAGNOSIS Multiple languages Neurosciences Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/69280