Universität zu Köln

Sobanski, Piotr Z. ORCID: 0000-0002-2014-0356, Alt-Epping, Bernd, Currow, David C. ORCID: 0000-0003-1988-1250, Goodlin, Sarah J. ORCID: 0000-0002-7977-8290, Grodzicki, Tomasz ORCID: 0000-0003-0159-4915, Hogg, Karen ORCID: 0000-0001-7986-8192, Janssen, Daisy J. A. ORCID: 0000-0002-1827-9869, Johnson, Miriam J. ORCID: 0000-0001-6204-9158, Krajnik, Malgorzata ORCID: 0000-0001-9473-6163, Leget, Carlo ORCID: 0000-0002-6647-8141, Martinez-Selles, Manuel ORCID: 0000-0003-0289-6229, Moroni, Matteo ORCID: 0000-0002-1259-5967, Mueller, Paul S., Ryder, Mary ORCID: 0000-0003-0988-4941, Simon, Steffen T. ORCID: 0000-0002-6884-1813, Stowe, Emily ORCID: 0000-0002-5263-502X and Larkin, Philip J. ORCID: 0000-0001-8424-3920 (2020). Palliative care for people living with heart failure: European Association for Palliative Care Task Force expert position statement. Cardiovasc. Res., 116 (1). S. 12 - 28. OXFORD: OXFORD UNIV PRESS. ISSN 1755-3245

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Abstract

Contrary to common perception, modern palliative care (PC) is applicable to all people with an incurable disease, not only cancer. PC is appropriate at every stage of disease progression, when PC needs emerge. These needs can be of physical, emotional, social, or spiritual nature. This document encourages the use of validated assessment tools to recognize such needs and ascertain efficacy of management. PC interventions should be provided alongside cardiologic management. Treating breathlessness is more effective, when cardiologic management is supported by PC interventions. Treating other symptoms like pain or depression requires predominantly PC interventions. Advance Care Planning aims to ensure that the future treatment and care the person receives is concordant with their personal values and goals, even after losing decision-making capacity. It should include also disease specific aspects, such as modification of implantable device activity at the end of life. The Whole Person Care concept describes the inseparability of the physical, emotional, and spiritual dimensions of the human being. Addressing psychological and spiritual needs, together with medical treatment, maintains personal integrity and promotes emotional healing. Most PC concerns can be addressed by the usual care team, supported by a PC specialist if needed. During dying, the persons' needs may change dynamically and intensive PC is often required. Following the death of a person, bereavement services benefit loved ones. The authors conclude that the inclusion of PC within the regular clinical framework for people with heart failure results in a substantial improvement in quality of life as well as comfort and dignity whilst dying.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Sobanski, Piotr Z. UNSPECIFIED orcid.org/0000-0002-2014-0356 UNSPECIFIED Alt-Epping, Bernd UNSPECIFIED UNSPECIFIED UNSPECIFIED Currow, David C. UNSPECIFIED orcid.org/0000-0003-1988-1250 UNSPECIFIED Goodlin, Sarah J. UNSPECIFIED orcid.org/0000-0002-7977-8290 UNSPECIFIED Grodzicki, Tomasz UNSPECIFIED orcid.org/0000-0003-0159-4915 UNSPECIFIED Hogg, Karen UNSPECIFIED orcid.org/0000-0001-7986-8192 UNSPECIFIED Janssen, Daisy J. A. UNSPECIFIED orcid.org/0000-0002-1827-9869 UNSPECIFIED Johnson, Miriam J. UNSPECIFIED orcid.org/0000-0001-6204-9158 UNSPECIFIED Krajnik, Malgorzata UNSPECIFIED orcid.org/0000-0001-9473-6163 UNSPECIFIED Leget, Carlo UNSPECIFIED orcid.org/0000-0002-6647-8141 UNSPECIFIED Martinez-Selles, Manuel UNSPECIFIED orcid.org/0000-0003-0289-6229 UNSPECIFIED Moroni, Matteo UNSPECIFIED orcid.org/0000-0002-1259-5967 UNSPECIFIED Mueller, Paul S. UNSPECIFIED UNSPECIFIED UNSPECIFIED Ryder, Mary UNSPECIFIED orcid.org/0000-0003-0988-4941 UNSPECIFIED Simon, Steffen T. UNSPECIFIED orcid.org/0000-0002-6884-1813 UNSPECIFIED Stowe, Emily UNSPECIFIED orcid.org/0000-0002-5263-502X UNSPECIFIED Larkin, Philip J. UNSPECIFIED orcid.org/0000-0001-8424-3920 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-352151
DOI:	10.1093/cvr/cvz200
Journal or Publication Title:	Cardiovasc. Res.
Volume:	116
Number:	1
Page Range:	S. 12 - 28
Date:	2020
Publisher:	OXFORD UNIV PRESS
Place of Publication:	OXFORD
ISSN:	1755-3245
Language:	English
Faculty:	Faculty of Medicine
Divisions:	Faculty of Medicine > Sonstiges > Zentrum für Versorgungsforschung Köln
Subjects:	Medical sciences Medicine
Uncontrolled Keywords:	Keywords Language END-OF-LIFE; IMPLANTABLE CARDIOVERTER-DEFIBRILLATORS; MECHANICAL CIRCULATORY SUPPORT; OBSTRUCTIVE PULMONARY-DISEASE; SPINAL-CORD STIMULATION; CHRONIC ORGAN FAILURE; PATIENTS NEARING END; CONSENSUS STATEMENT; SYMPTOM BURDEN; AMERICAN-COLLEGE Multiple languages Cardiac & Cardiovascular Systems Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/35215