Sobanski, Piotr Z., Alt-Epping, Bernd, Currow, David C., Goodlin, Sarah J., Grodzicki, Tomasz, Hogg, Karen ORCID: 0000-0001-7986-8192, Janssen, Daisy J. A., Johnson, Miriam J., Krajnik, Malgorzata, Leget, Carlo ORCID: 0000-0002-6647-8141, Martinez-Selles, Manuel, Moroni, Matteo, Mueller, Paul S., Ryder, Mary ORCID: 0000-0003-0988-4941, Simon, Steffen T., Stowe, Emily and Larkin, Philip J. (2020). Palliative care for people living with heart failure: European Association for Palliative Care Task Force expert position statement. Cardiovasc. Res., 116 (1). S. 12 - 28. OXFORD: OXFORD UNIV PRESS. ISSN 1755-3245

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Abstract

Contrary to common perception, modern palliative care (PC) is applicable to all people with an incurable disease, not only cancer. PC is appropriate at every stage of disease progression, when PC needs emerge. These needs can be of physical, emotional, social, or spiritual nature. This document encourages the use of validated assessment tools to recognize such needs and ascertain efficacy of management. PC interventions should be provided alongside cardiologic management. Treating breathlessness is more effective, when cardiologic management is supported by PC interventions. Treating other symptoms like pain or depression requires predominantly PC interventions. Advance Care Planning aims to ensure that the future treatment and care the person receives is concordant with their personal values and goals, even after losing decision-making capacity. It should include also disease specific aspects, such as modification of implantable device activity at the end of life. The Whole Person Care concept describes the inseparability of the physical, emotional, and spiritual dimensions of the human being. Addressing psychological and spiritual needs, together with medical treatment, maintains personal integrity and promotes emotional healing. Most PC concerns can be addressed by the usual care team, supported by a PC specialist if needed. During dying, the persons' needs may change dynamically and intensive PC is often required. Following the death of a person, bereavement services benefit loved ones. The authors conclude that the inclusion of PC within the regular clinical framework for people with heart failure results in a substantial improvement in quality of life as well as comfort and dignity whilst dying.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Sobanski, Piotr Z.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Alt-Epping, BerndUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Currow, David C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Goodlin, Sarah J.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Grodzicki, TomaszUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hogg, KarenUNSPECIFIEDorcid.org/0000-0001-7986-8192UNSPECIFIED
Janssen, Daisy J. A.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Johnson, Miriam J.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Krajnik, MalgorzataUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Leget, CarloUNSPECIFIEDorcid.org/0000-0002-6647-8141UNSPECIFIED
Martinez-Selles, ManuelUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Moroni, MatteoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Mueller, Paul S.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ryder, MaryUNSPECIFIEDorcid.org/0000-0003-0988-4941UNSPECIFIED
Simon, Steffen T.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Stowe, EmilyUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Larkin, Philip J.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-352151
DOI: 10.1093/cvr/cvz200
Journal or Publication Title: Cardiovasc. Res.
Volume: 116
Number: 1
Page Range: S. 12 - 28
Date: 2020
Publisher: OXFORD UNIV PRESS
Place of Publication: OXFORD
ISSN: 1755-3245
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
END-OF-LIFE; IMPLANTABLE CARDIOVERTER-DEFIBRILLATORS; MECHANICAL CIRCULATORY SUPPORT; OBSTRUCTIVE PULMONARY-DISEASE; SPINAL-CORD STIMULATION; CHRONIC ORGAN FAILURE; PATIENTS NEARING END; CONSENSUS STATEMENT; SYMPTOM BURDEN; AMERICAN-COLLEGEMultiple languages
Cardiac & Cardiovascular SystemsMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/35215

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