Universität zu Köln

Koehler, Felix C., Blomberg, Linda, Brehm, Thomas Theo, Buettner, Stefan, Cornely, Oliver A., Degen, Olaf, Di Cristanziano, Veronica, Dolff, Sebastian, Eberwein, Lukas, Hoxha, Elion, Hoyer-Allo, K. Johanna R., Rudolf, Sarah, Spaeth, Martin R., Wanken, Manuel, Mueller, Roman-Ulrich and Burst, Volker (2021). Development and design of the Hantavirus registry - HantaReg - for epidemiological studies, outbreaks and clinical studies on hantavirus disease. Clin. Kidney J., 14 (11). S. 2365 - 2371. OXFORD: OXFORD UNIV PRESS. ISSN 2048-8513

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Abstract

Background. Frequent outbreaks around the globe and endemic appearance in different parts of the world emphasize the substantial risk of hantavirus diseases. Increasing incidence rates, trends of changing distribution of hantavirus species and new insights into clinical courses of hantavirus diseases call for multinational surveillance. Furthermore, evidence-based guidelines for the management of hantavirus diseases and scoring systems, which allow stratification of patients into risk categories, are lacking. Methods. Hantavirus registry (HantaReg) is a novel registry platform facilitating multinational research of hantavirus-caused diseases, such as haemorrhagic fever with renal syndrome (HFRS) and hantavirus cardiopulmonary syndrome (HCPS). HantaReg provides an electronic case report form and uses the General Data Protection Regulation compliant platform clinicalsurveys.net, which can be accessed from any internet browser in the world. Having a modular structure, the registry platform is designed to display or hide questions and items according to the documented case (e.g. patient with HFRS versus HCPS) to facilitate fast, but standardized, data entry. Information categories documented in HantaReg are demographics, pre-existing diseases, clinical presentation, diagnostic and therapeutic approaches, as well as outcome. Conclusions. HantaReg is a novel, ready-to-use platform for clinical and epidemiological studies on hantavirus diseases and facilitates the documentation of the disease course associated with hantavirus infections. HantaReg is expected to promote international collaboration and contributes to improving patient care through the analysis of diagnostic and treatment pathways for hantavirus diseases, providing evidence for robust treatment recommendations. Moreover, HantaReg enables the development of prognosis-indicating scoring systems for patients with hantavirus disease.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Koehler, Felix C. UNSPECIFIED UNSPECIFIED UNSPECIFIED Blomberg, Linda UNSPECIFIED UNSPECIFIED UNSPECIFIED Brehm, Thomas Theo UNSPECIFIED UNSPECIFIED UNSPECIFIED Buettner, Stefan UNSPECIFIED UNSPECIFIED UNSPECIFIED Cornely, Oliver A. UNSPECIFIED UNSPECIFIED UNSPECIFIED Degen, Olaf UNSPECIFIED UNSPECIFIED UNSPECIFIED Di Cristanziano, Veronica UNSPECIFIED UNSPECIFIED UNSPECIFIED Dolff, Sebastian UNSPECIFIED UNSPECIFIED UNSPECIFIED Eberwein, Lukas UNSPECIFIED UNSPECIFIED UNSPECIFIED Hoxha, Elion UNSPECIFIED UNSPECIFIED UNSPECIFIED Hoyer-Allo, K. Johanna R. UNSPECIFIED UNSPECIFIED UNSPECIFIED Rudolf, Sarah UNSPECIFIED UNSPECIFIED UNSPECIFIED Spaeth, Martin R. UNSPECIFIED UNSPECIFIED UNSPECIFIED Wanken, Manuel UNSPECIFIED UNSPECIFIED UNSPECIFIED Mueller, Roman-Ulrich UNSPECIFIED UNSPECIFIED UNSPECIFIED Burst, Volker UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-595756
DOI:	10.1093/ckj/sfab053
Journal or Publication Title:	Clin. Kidney J.
Volume:	14
Number:	11
Page Range:	S. 2365 - 2371
Date:	2021
Publisher:	OXFORD UNIV PRESS
Place of Publication:	OXFORD
ISSN:	2048-8513
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language PULMONARY SYNDROME; HEMORRHAGIC-FEVER; PUUMALA VIRUS; UNITED-STATES; INFECTION; ARGENTINA; GERMANY Multiple languages Urology & Nephrology Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/59575