Universität zu Köln

2023

Peper, Julia ORCID: 0000-0002-0654-9972, Köpke, Sascha ORCID: 0000-0003-4106-4919, Solari, Alessandra ORCID: 0000-0001-9930-7579, Giordano, Andrea ORCID: 0000-0003-4466-9788, Gold, Stefan M. ORCID: 0000-0001-5188-4799, Hellwig, Kerstin ORCID: 0000-0003-4467-9011, Steinberg, Lea ORCID: 0000-0002-3227-9638, Steckelberg, Anke, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Rahn, Anne Christin ORCID: 0000-0002-9051-3621 (2023). Knowledge and worries on motherhood choice in multiple sclerosis – a cross-sectional study on patient-reported outcome measures. Multiple Sclerosis and Related Disorders, 76. p. 104789. Elsevier. ISSN 2211-0348

Schubert, Charlotte ORCID: 0000-0002-2967-4290, Steinberg, Lea ORCID: 0000-0002-3227-9638, Peper, Julia ORCID: 0000-0002-0654-9972, Ramien, Caren ORCID: 0000-0002-3949-1359, Hellwig, Kerstin ORCID: 0000-0003-4467-9011, Köpke, Sascha ORCID: 0000-0003-4106-4919, Solari, Alessandra ORCID: 0000-0001-9930-7579, Giordano, Andrea ORCID: 0000-0003-4466-9788, Gold, Stefan M. ORCID: 0000-0001-5188-4799, Friede, Tim ORCID: 0000-0001-5347-7441, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Rahn, Anne Christin ORCID: 0000-0002-9051-3621 (2023). Postpartum relapse risk in multiple sclerosis: a systematic review and meta-analysis. Journal of Neurology, Neurosurgery & Psychiatry, 94 (9). pp. 718-725. BMJ Publishing Group. ISSN 0022-3050

2022

Artmann, Anna ORCID: 0000-0001-5845-3078, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Köpke, Sascha ORCID: 0000-0003-4106-4919, Thomalla, Götz ORCID: 0000-0002-4785-1449, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Alegiani, Anna Christina ORCID: 0000-0001-8216-6220 (2022). Risk communication in acute stroke patients – from qualitative data to a pilot randomised controlled trial. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen, 169. pp. 19-27. Elsevier. ISSN 1865-9217

Heesen, Christoph, Rahn, Anne Christin and Koepke, Sascha (2022). Communicating with people with MS: A key role for evidence-based patient information. Patient Educ. Couns., 105 (12). S. 3339 - 3341. CLARE: ELSEVIER IRELAND LTD. ISSN 1873-5134

Heesen, Christoph ORCID: 0000-0001-8131-9467, Rahn, Anne Christin and Köpke, Sascha ORCID: 0000-0003-4106-4919 (2022). Communicating with people with MS: A key role for evidence-based patient information. Patient Education and Counseling, 105 (12). pp. 3339-3340. Elsevier. ISSN 0738-3991

Krause, Nicole ORCID: 0000-0001-6681-7054, Riemann-Lorenz, Karin, Rahn, Anne Christin, Poettgen, Jana, Koepke, Sascha, Meyer, Bjoern, Thale, Frithjof, Temmes, Herbert, van de Loo, Markus, Gold, Stefan M. and Heesen, Christoph (2022). 'That would have been the perfect thing after diagnosis': development of a digital lifestyle management application in multiple sclerosis. Ther. Adv. Neurol. Disord., 15. LONDON: SAGE PUBLICATIONS LTD. ISSN 1756-2864

Krause, Nicole ORCID: 0000-0001-6681-7054, Riemann-Lorenz, Karin ORCID: 0000-0002-0779-2640, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Pöttgen, Jana ORCID: 0000-0002-6665-2154, Köpke, Sascha ORCID: 0000-0003-4106-4919, Meyer, Björn, Thale, Frithjof ORCID: 0000-0002-2721-1620, Temmes, Herbert, van de Loo, Markus, Gold, Stefan M. ORCID: 0000-0001-5188-4799 and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2022). ‘That would have been the perfect thing after diagnosis’: development of a digital lifestyle management application in multiple sclerosis. Therapeutic Advances in Neurological Disorders, 15. p. 175628642211187. SAGE. ISSN 1756-2864

Schneider, Anne ORCID: 0000-0001-8005-9755, Fasshauer, E., Scheiderbauer, Jutta, Warnke, Clemens ORCID: 0000-0002-3510-9255, Köpke, Sascha ORCID: 0000-0003-4106-4919, Kasper, Jürgen, Toussaint, M., Temmes, Herbert, Hemmer, Bernhard ORCID: 0000-0001-5985-6784, Schiffmann, I, Rahn, Anne Christin ORCID: 0000-0002-9051-3621 and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2022). Development and evaluation of evidence-based patient information handbooks about multiple sclerosis immunotherapies. Multiple Sclerosis and Related Disorders, 60. p. 103728. Elsevier. ISSN 2211-0348

Steinberg, Lea ORCID: 0000-0002-3227-9638, Peper, Julia, Koepke, Sascha, Solari, Alessandra, Giordano, Andrea ORCID: 0000-0003-4466-9788, Gold, Stefan M., Hellwig, Kerstin, Heesen, Christoph and Rahn, Anne Christin (2022). Motherhood choice in multiple sclerosis (MoMS) development and piloting of patient-reported outcome measures. Mult. Scler. Relat. Disord., 63. OXFORD: ELSEVIER SCI LTD. ISSN 2211-0356

Steinberg, Lea ORCID: 0000-0002-3227-9638, Peper, Julia ORCID: 0000-0002-0654-9972, Köpke, Sascha ORCID: 0000-0003-4106-4919, Solari, Alessandra ORCID: 0000-0001-9930-7579, Giordano, Andrea ORCID: 0000-0003-4466-9788, Gold, Stefan M. ORCID: 0000-0001-5188-4799, Hellwig, Kerstin ORCID: 0000-0003-4467-9011, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Rahn, Anne Christin ORCID: 0000-0002-9051-3621 (2022). Motherhood choice in multiple sclerosis (MoMS) development and piloting of patient-reported outcome measures. Multiple Sclerosis and Related Disorders, 63. p. 103831. Elsevier. ISSN 2211-0348

Wenzel, Lisa, Heesen, Christoph, Peper, Julia, Grentzenberg, Kristina, Fasshauer, Edeltraud, Scheiderbauer, Jutta, Thale, Frithjof, Meyer, Bjoern, Koepke, Sascha and Rahn, Anne Christin (2022). An interactive web-based programme on relapse management for people with multiple sclerosis (POWER@MS2) - development, feasibility, and pilot testing of a complex intervention. Front. Neurol., 13. LAUSANNE: FRONTIERS MEDIA SA. ISSN 1664-2295

Wenzel, Lisa ORCID: 0000-0002-6798-0766, Heesen, Christoph ORCID: 0000-0001-8131-9467, Peper, Julia ORCID: 0000-0002-0654-9972, Grentzenberg, Kristina, Faßhauer, Edeltraud, Scheiderbauer, Jutta, Thale, Frithjof ORCID: 0000-0002-2721-1620, Meyer, Björn, Köpke, Sascha ORCID: 0000-0003-4106-4919 and Rahn, Anne Christin ORCID: 0000-0002-9051-3621 (2022). An interactive web-based programme on relapse management for people with multiple sclerosis (POWER@MS2) - development, feasibility, and pilot testing of a complex intervention. Frontiers in Neurology, 13. Frontiers Research Foundation. ISSN 1664-2295

2021

Barabasch, Anna, Riemann-Lorenz, Karin, Kofahl, Christopher, Scheiderbauer, Jutta, Eklund, Desiree, Kleiter, Ingo, Kasper, Jurgen, Kopke, Sascha, Lezius, Susanne, Zapf, Antonia, Rahn, Anne Christin and Heesen, Christoph (2021). Impact of a multimedia website with patient experiences of multiple sclerosis (PExMS) on immunotherapy decision-making: study protocol for a pilot randomised controlled trial in a mixed-methods design. Pilot Feasibility Stud., 7 (1). LONDON: BMC. ISSN 2055-5784

Barabasch, Anna ORCID: 0000-0001-5301-5714, Riemann-Lorenz, Karin ORCID: 0000-0002-0779-2640, Kofahl, Christopher ORCID: 0000-0002-0503-3077, Scheiderbauer, Jutta, Eklund, Desiree, Kleiter, Ingo ORCID: 0000-0002-8249-4408, Kasper, Jürgen, Köpke, Sascha ORCID: 0000-0003-4106-4919, Lezius, Susanne ORCID: 0000-0002-4832-4333, Zapf, Antonia ORCID: 0000-0002-8467-0508, Rahn, Anne Christin ORCID: 0000-0002-9051-3621 and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2021). Impact of a multimedia website with patient experiences of multiple sclerosis (PExMS) on immunotherapy decision-making: study protocol for a pilot randomised controlled trial in a mixed-methods design. Pilot and Feasibility Studies, 7 (1). BMC. ISSN 2055-5784

Haker, Michel, Heesen, Christoph ORCID: 0000-0001-8131-9467, Wenzel, L., Köpke, Sascha ORCID: 0000-0003-4106-4919, Rahn, Anne Christin ORCID: 0000-0002-9051-3621 and Kasper, Jürgen (2021). Decision-making about corticosteroids in relapses of multiple sclerosis – development of a questionnaire based on the theory of planned behaviour. Multiple Sclerosis and Related Disorders, 55. p. 103182. Elsevier. ISSN 2211-0348

Krause, Nicole ORCID: 0000-0001-6681-7054, Riemann-Lorenz, Karin ORCID: 0000-0002-0779-2640, Steffen, Tanja, Rahn, Anne Christin, Pottgen, Jana, Stellmann, Jan-Patrick ORCID: 0000-0003-2565-2833, Kopke, Sascha ORCID: 0000-0003-4106-4919, Friede, Tim ORCID: 0000-0001-5347-7441, Icks, Andrea, Vomhof, Markus ORCID: 0000-0002-2714-6371, Temmes, Herbert, van de Loo, Markus, Gold, Stefan M. and Heesen, Christoph (2021). Study protocol for a randomised controlled trial of a web-based behavioural lifestyle programme for emPOWERment in early Multiple Sclerosis (POWER@MS1). BMJ Open, 11 (2). LONDON: BMJ PUBLISHING GROUP. ISSN 2044-6055

Krause, Nicole ORCID: 0000-0001-6681-7054, Riemann-Lorenz, Karin ORCID: 0000-0002-0779-2640, Steffen, Tanja, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Pöttgen, Jana ORCID: 0000-0002-6665-2154, Stellmann, Jan-Patrick ORCID: 0000-0003-2565-2833, Köpke, Sascha ORCID: 0000-0003-4106-4919, Friede, Tim ORCID: 0000-0001-5347-7441, Icks, Andrea ORCID: 0000-0002-4882-969X, Vomhof, Markus ORCID: 0000-0002-2714-6371, Temmes, Herbert, van de Loo, Markus, Gold, Stefan M ORCID: 0000-0001-5188-4799 and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2021). Study protocol for a randomised controlled trial of a web-based behavioural lifestyle programme for emPOWERment in early Multiple Sclerosis (POWER@MS1). BMJ Open, 11 (2). e041720. BMJ PUBLISHING GROUP. ISSN 2044-6055

Rahn, Anne Christin, Jull, Janet, Boland, Laura ORCID: 0000-0001-8680-9844, Finderup, Jeanette ORCID: 0000-0003-2646-0227, Loiselle, Marie-Chantal, Smith, Maureen, Koepke, Sascha and Stacey, Dawn ORCID: 0000-0002-2681-741X (2021). Guidance and/or Decision Coaching with Patient Decision Aids: Scoping Reviews to Inform the International Patient Decision Aid Standards (IPDAS). Med. Decis. Mak., 41 (7). S. 938 - 954. THOUSAND OAKS: SAGE PUBLICATIONS INC. ISSN 1552-681X

Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Jull, Janet ORCID: 0000-0002-0404-4313, Boland, Laura ORCID: 0000-0001-8680-9844, Finderup, Jeanette ORCID: 0000-0003-2646-0227, Loiselle, Marie-Chantal ORCID: 0000-0002-5293-6666, Smith, Maureen ORCID: 0000-0003-4370-000X, Köpke, Sascha ORCID: 0000-0003-4106-4919 and Stacey, Dawn ORCID: 0000-0002-2681-741X (2021). Guidance and/or Decision Coaching with Patient Decision Aids: Scoping Reviews to Inform the International Patient Decision Aid Standards (IPDAS). Medical Decision Making, 41 (7). pp. 938-953. SAGE. ISSN 0272-989X

Rahn, Anne Christin, Wenzel, Lisa, Icks, Andrea, Stahmann, Alexander, Scheiderbauer, Jutta, Grentzenberg, Kristina, Vomhof, Markus, Montalbo, Joseph, Friede, Tim ORCID: 0000-0001-5347-7441, Heesen, Christoph and Koepke, Sascha (2021). Development and evaluation of an interactive web-based decision-making programme on relapse management for people with multiple sclerosis (POWER@MS2)-study protocol for a randomised controlled trial. Trials, 22 (1). LONDON: BMC. ISSN 1745-6215

Rahn, Anne Christin, Wenzel, Lisa, Icks, Andrea, Stahmann, Alexander, Scheiderbauer, Jutta, Grentzenberg, Kristina, Vomhof, Markus, Montalbo, Joseph, Friede, Tim ORCID: 0000-0001-5347-7441, Heesen, Christoph and Koepke, Sascha (2021). Development and evaluation of an interactive web-based decision-making programme on relapse management for people with multiple sclerosis (POWER@MS2)-study protocol for a randomised controlled trial (vol 21, 139, 2021). Trials, 22 (1). LONDON: BMC. ISSN 1745-6215

Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Wenzel, Lisa ORCID: 0000-0002-6798-0766, Icks, Andrea ORCID: 0000-0002-4882-969X, Stahmann, Alexander ORCID: 0000-0001-5308-105X, Scheiderbauer, Jutta, Grentzenberg, Kristina, Vomhof, Markus ORCID: 0000-0002-2714-6371, Montalbo, Joseph, Friede, Tim ORCID: 0000-0001-5347-7441, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Köpke, Sascha ORCID: 0000-0003-4106-4919 (2021). Correction to: Development and evaluation of an interactive web-based decision-making programme on relapse management for people with multiple sclerosis (POWER@MS2)—study protocol for a randomised controlled trial. Trials, 22 (1). p. 196. BMC. ISSN 1745-6215

Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Wenzel, Lisa ORCID: 0000-0002-6798-0766, Icks, Andrea ORCID: 0000-0002-4882-969X, Stahmann, Alexander ORCID: 0000-0001-5308-105X, Scheiderbauer, Jutta, Grentzenberg, Kristina, Vomhof, Markus ORCID: 0000-0002-2714-6371, Montalbo, Joseph, Friede, Tim ORCID: 0000-0001-5347-7441, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Köpke, Sascha ORCID: 0000-0003-4106-4919 (2021). Development and evaluation of an interactive web-based decision-making programme on relapse management for people with multiple sclerosis (POWER@MS2)—study protocol for a randomised controlled trial. Trials, 22 (1). BMC. ISSN 1745-6215

Wenzel, Lisa, Heesen, Christoph, Scheiderbauer, Jutta, van de Loo, Markus, Koepke, Sascha and Rahn, Anne Christin (2021). Evaluation of an interactive web-based programme on relapse management for people with multiple sclerosis (POWER@MS2): study protocol for a process evaluation accompanying a randomised controlled trial. BMJ Open, 11 (10). LONDON: BMJ PUBLISHING GROUP. ISSN 2044-6055

Wenzel, Lisa ORCID: 0000-0002-4862-6008, Heesen, Christoph ORCID: 0000-0001-8131-9467, Scheiderbauer, Jutta, van de Loo, Markus, Köpke, Sascha ORCID: 0000-0003-4106-4919 and Rahn, Anne Christin ORCID: 0000-0002-9051-3621 (2021). Evaluation of an interactive web-based programme on relapse management for people with multiple sclerosis (POWER@MS2): study protocol for a process evaluation accompanying a randomised controlled trial. BMJ Open, 11 (10). e046874. BMJ PUBLISHING GROUP. ISSN 2044-6055

2020

Alegiani, Anna Christina ORCID: 0000-0001-8216-6220, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Steckelberg, Anke, Thomalla, Götz ORCID: 0000-0002-4785-1449, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Köpke, Sascha ORCID: 0000-0003-4106-4919 (2020). Quality of Stroke Patient Information Applied in Randomized Controlled Trials—Literature Review. Frontiers in Neurology, 11. Frontiers Research Foundation. ISSN 1664-2295

Peper, Julia, Steinberg, Lea, Gold, Stefan, Koepke, Sascha, Heesen, Christoph and Rahn, Anne Christin (2020). Motherhood choice in multiple sclerosis (MoMS) First results of a multiphase mixed-methods study. Mult. Scler. J., 26 (2_SUPPL). S. 46 - 47. LONDON: SAGE PUBLICATIONS LTD. ISSN 1477-0970

Pust, Gesa E.A., Untiedt, Benthe, Randerath, Jennifer ORCID: 0000-0002-0794-5571, Barabasch, Anna, Köpke, Sascha ORCID: 0000-0003-4106-4919, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Hansen, Hilke and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2020). Exploring Adherence to First-Line and Second-Line Immunotherapies in Multiple Sclerosis. International Journal of MS Care, 22 (5). pp. 219-225. ISSN 1537-2073

Solari, Alessandra ORCID: 0000-0001-9930-7579, Giordano, Andrea ORCID: 0000-0003-4466-9788, Sastre-Garriga, Jaume, Köpke, Sascha ORCID: 0000-0003-4106-4919, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, Ingo ORCID: 0000-0002-8249-4408, Aleksovska, Katina ORCID: 0000-0002-2372-4453, Battaglia, Mario A. ORCID: 0000-0002-8106-8239, Bay, Jette, Copetti, Massimiliano ORCID: 0000-0002-7960-5947, Drulovic, Jelena ORCID: 0000-0002-4516-3458, Kooij, Liesbeth, Mens, John, Murillo, Edwin R. Meza ORCID: 0000-0001-6065-3546, Milanov, Ivan ORCID: 0000-0002-4522-4070, Milo, Ron ORCID: 0000-0001-8556-2579, Pekmezovic, Tatiana ORCID: 0000-0001-7978-1409, Vosburgh, Janine, Silber, Eli ORCID: 0000-0002-3972-0780, Veronese, Simone ORCID: 0000-0002-9555-7252, Patti, Francesco ORCID: 0000-0002-6923-0846, Voltz, Raymond ORCID: 0000-0002-4761-3395 and Oliver, David J. ORCID: 0000-0001-9302-3225 (2020). EAN Guideline on Palliative Care of People with Severe, Progressive Multiple Sclerosis. Journal of Palliative Medicine, 23 (11). pp. 1426-1443. Liebert. ISSN 1096-6218

Solari, Alessandra ORCID: 0000-0001-9930-7579, Giordano, Andrea ORCID: 0000-0003-4466-9788, Sastre‐Garriga, J., Köpke, Sascha ORCID: 0000-0003-4106-4919, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, I., Aleksovska, K., Battaglia, M. A., Bay, J., Copetti, M., Drulovic, J., Kooij, L., Mens, J., Meza Murillo, E. R. ORCID: 0000-0001-6065-3546, Milanov, I., Milo, R., Pekmezovic, T., Vosburgh, J., Silber, E., Veronese, Simone ORCID: 0000-0002-9555-7252, Patti, Francesco ORCID: 0000-0002-6923-0846, Voltz, Raymond ORCID: 0000-0002-4761-3395 and Oliver, David ORCID: 0000-0001-9302-3225 (2020). EAN guideline on palliative care of people with severe, progressive multiple sclerosis. European Journal of Neurology, 27 (8). pp. 1510-1529. Wiley-Blackwell. ISSN 1351-5101

2019

Alegiani, Anna Christina ORCID: 0000-0001-8216-6220, Albrecht, Sindy ORCID: 0000-0002-4777-6186, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Köpke, Sascha ORCID: 0000-0003-4106-4919, Thomalla, Götz ORCID: 0000-0002-4785-1449 and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2019). Reasons for delayed admission after stroke: results of a qualitative and quantitative survey. Patient Preference and Adherence, 13. pp. 739-747. Dovepress. ISSN 1177-889X

Köpke, Sascha ORCID: 0000-0003-4106-4919, Giordano, Andrea ORCID: 0000-0003-4466-9788, Veronese, Simone ORCID: 0000-0002-9555-7252, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, I., Basedow-Rajwich, Birgit ORCID: 0000-0003-0735-9983, Fornari, Arianna ORCID: 0000-0003-4228-5473, Battaglia, Mario Alberto ORCID: 0000-0002-8106-8239, Drulovic, Jelena ORCID: 0000-0002-4516-3458, Kooij, Liesbeth, Koops, J., Mens, J., Meza Murillo, Edwin Roger ORCID: 0000-0001-6065-3546, Milanov, Ivan ORCID: 0000-0002-4522-4070, Milo, Ron ORCID: 0000-0001-8556-2579, Patti, Francesco ORCID: 0000-0002-6923-0846, Pekmezovic, Tatiana ORCID: 0000-0001-7978-1409, Sastre-Garriga, Jaume ORCID: 0000-0002-1589-2254, Silber, Eli ORCID: 0000-0002-3972-0780, Vosburgh, J., Voltz, Raymond ORCID: 0000-0002-4761-3395, Bayry, J., Oliver, David ORCID: 0000-0001-9302-3225 and Solari, Alessandra ORCID: 0000-0001-9930-7579 (2019). Patient and caregiver involvement in the formulation of guideline questions: findings from the European Academy of Neurology guideline on palliative care of people with severe multiple sclerosis. European Journal of Neurology, 26 (1). pp. 41-50. Wiley-Blackwell. ISSN 1468-1331

Köpke, Sascha ORCID: 0000-0003-4106-4919, Giordano, Andrea ORCID: 0000-0003-4466-9788, Veronese, Simone ORCID: 0000-0002-9555-7252, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, Ingo, Basedow‐Rajwich, Birgit ORCID: 0000-0003-0735-9983, Fornari, Arianna ORCID: 0000-0003-4228-5473, Battaglia, M. A., Drulovic, J., Kooij, L., Koops, J., Mensah, J., Meza Murillo, Edwin Roger ORCID: 0000-0001-6065-3546, Milanov, Ivan ORCID: 0000-0002-4522-4070, Milo, Ron ORCID: 0000-0001-8556-2579, Patti, Francesco ORCID: 0000-0002-6923-0846, Pekmezovic, Tatiana ORCID: 0000-0001-7978-1409, Sastre‐Garriga, J., Vosburgh, J., Voltz, Raymond ORCID: 0000-0002-4761-3395, Bayry, J., Oliver, David ORCID: 0000-0001-9302-3225 and Solari, Alessandra ORCID: 0000-0001-9930-7579 (2019). Patient and caregiver involvement in the formulation of guideline questions: findings from the European Academy of Neurology guideline on palliative care of people with severe multiple sclerosis. European Journal of Neurology, 26 (1). pp. 41-50. Wiley. ISSN 1351-5101

2018

Solari, Alessandra ORCID: 0000-0001-9930-7579, Köpke, Sascha ORCID: 0000-0003-4106-4919, Giordano, Andrea ORCID: 0000-0003-4466-9788, Veronese, Simone ORCID: 0000-0002-9555-7252, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, Ingo ORCID: 0000-0002-8249-4408, Basedow-Rajwich, Birgit ORCID: 0000-0003-0735-9983, Fornari, Arianna ORCID: 0000-0003-4228-5473, Battaglia, Mario Alberto ORCID: 0000-0002-8106-8239, Drulovic, Jelena ORCID: 0000-0002-4516-3458, Kooij, Liesbeth, Koops, Johan, Mens, John, Meza Murillo, Edwin Roger ORCID: 0000-0001-6065-3546, Milanov, Ivan ORCID: 0000-0002-4522-4070, Milo, Ron ORCID: 0000-0001-8556-2579, Patti, Francesco Paolo ORCID: 0000-0002-7975-2947, Pekmezovic, Tatjana ORCID: 0000-0001-7978-1409, Sastre-Garriga, Jaume ORCID: 0000-0002-1589-2254, Silber, Eli ORCID: 0000-0002-3972-0780, Vosburgh, Janine, Voltz, Raymond ORCID: 0000-0002-4761-3395, Bay, Jette, Oliver, David J. ORCID: 0000-0001-9302-3225 and Solari, Alessandra ORCID: 0000-0001-9930-7579 (2018). Patient and caregiver involvement in formulation of guideline questions: Findings from the EAN Guideline on Palliative Care of People with Severe Multiple Sclerosis. European Journal of Neurology, 26 (1). pp. 41-50. Wiley-Blackwell. ISSN 1351-5101